Patients Endometriosis

Do you feel like people truly understand endometriosis?

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endome

03/10/2021 at 5:34 PM

endome

Last activity on 06/17/2021 at 3:46 PM

Joined in 2019

10 comments posted | 8 in the Endometriosis Forum

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I have endometriosis and I feel like:

1: No one understands what this involves.

2: If they do know, they think it is just slightly painful periods.

I find it very stressful and upsetting to be so misunderstood. Does anyone else feel like this this? Please help

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Courtney_J

Community manager

03/10/2021 at 5:58 PM

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Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

Joined in 2020

1,340 comments posted | 20 in the Endometriosis Forum

6 of their responses were helpful to members

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Hello @endome‍, thank you for opening this discussion. I'm sorry to hear you're feeling this way, endometriosis, though common, is unfortunately still largely misunderstood.

Can anyone else relate to what @endome‍ has described? Do you feel like people truly understand endometriosis - both doctors and the general public? Have you ever felt misunderstood by your doctors or your family and friends?
@PPatricia‍ @EhulaniLily‍ @LoriLynne‍ @Aprilgronbeck‍ @JitteryOwl‍ @Jujubeans‍ @Babygurl2019‍ @crkjkk‍ @babyhuey121795‍ @JulieGord81‍ @Golden‍ @San0220‍ @MaryPat‍ @Tosia1959‍ @crazie48‍ @Italiadani‍ @Mimilee2020‍

Feel free to share your thoughts here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity US

Do you feel like people truly understand endometriosis? https://www.carenity.us/forum/endometriosis/living-with-endometriosis/do-you-feel-like-people-truly-understand-endom-3143 2021-03-10 17:58:57

cristalis

05/12/2021 at 8:27 PM

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cristalis

Last activity on 08/17/2023 at 8:59 PM

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22 comments posted | 12 in the Endometriosis Forum

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@endome Yup, there is SO MUCH education that needs do be done. Why don't we learn about this in sex ed in school? There is not enough education, information, or research being done or share into women's health. I could go on a whole rant about this but I won't. But yes, I agree, I don't feel like people get it or the impact it has.

Do you feel like people truly understand endometriosis? https://www.carenity.us/forum/endometriosis/living-with-endometriosis/do-you-feel-like-people-truly-understand-endom-3143 2021-05-12 20:27:18

Do you feel like people truly understand endometriosis?

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