- Home
- Share
- Forum
- Lupus Forum
- Treatments for lupus
- What treatments have you tried for lupus? What works for you?
Patients Lupus
What treatments have you tried for lupus? What works for you?
- 62 views
- 0 support
- 6 comments
All comments
Lee__R
Community managerGood advisor
Lee__R
Community manager
Last activity on 04/03/2020 at 5:04 PM
Joined in 2018
1,338 comments posted | 37 in the Lupus Forum
2 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
-
Top chef
Hey members, does anyone have any input? Could be a good discussion where you can discuss Lupus medications and side-effects and how to cope with them, as I have seen various posts recently concerning this topic. Hope you do not mind me tagging you to bring this new discussion to your attention.
@JudyDill @Susie41$ @Heavenbound813 @staciebennett @Marglen @Duckie123 @Mwebesa @Plaidcoat @Mobeck @ccmcd3415 @barbara2018 @Jackie2018 @Bigb72 @bworrles57 @Trabrienjones82 @Heatherpeart4541 @GLENDA
Bkeilholtz
Bkeilholtz
Last activity on 01/30/2021 at 5:42 PM
Joined in 2018
It's hard to try different medications and cope with them. I take 11 to 14 meds a day. Everyday is completely different for me. I started benlesta infusions 5 months ago and honestly idk if they are helping or not. Guess it's coming with time. Has anyone else been through the infusions,?
See the signature
Brittany Keilholtz
Lee__R
Community managerGood advisor
Lee__R
Community manager
Last activity on 04/03/2020 at 5:04 PM
Joined in 2018
1,338 comments posted | 37 in the Lupus Forum
2 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
-
Top chef
@Bkeilholtz thank you for sharing... do you feel each medicine affects you differently each day? Do you take the medicines at the same time and same order daily?
Unregistered member
Hi mvn481,
I also experience some side effects with Plaquenil while others told me this med helped them to control their inflammation. Like you, I suffer from hair loss and dry eyes. I asked my rheumatologist already, he adjusted the dosage and told me to eat vitamin and omega3-s rich foods.
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 15 in the Lupus Forum
6 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
Hi everyone,
Have you seen this older discussion?
As you know, treatment for lupus tends to depend on the signs and symptoms you're experiencing. Typically treatment includes one or a combination of: NSAIDs, antimalarial drugs, corticosteroids, immunosuppressants, and biologics.
What treatments have you tried for your lupus? What has worked for you? Have you had to switch medications or treatments over the years? Have you had any side effects?
@drIce78 @Shielab26 @Yayaya @Bijoux @cmmusiclover @Christa.J @Annmayl @Moonbeam78 @heathermaupin0 @Jzagorski @ac8 @Taniya @moral201 @Soleana @kp73palmer @Tranthamkayla90 @larmstr6
Feel free to share here!
Take care,
Courtney
See the signature
Courtney_J, Community Manager, Carenity US
whatistheissue
Good advisor
whatistheissue
Last activity on 08/17/2023 at 12:26 AM
Joined in 2018
85 comments posted | 4 in the Lupus Forum
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
I'm relatively new to lupus and my doctor put me on an NSAID and plaquenil. Haven't really seen any changes or improvements yet, is that normal?
Give your opinion
Members are also commenting on...
Articles to discover...
11/22/2024 | Nutrition
Lupus diet and meal planning: Tanya’s top tips to reduce inflammation and manage symptoms
11/08/2023 | Testimonial
Lupus: "We didn’t choose lupus, but we CAN choose our journey"
08/23/2023 | Testimonial
Dietitian Tanya helps the Lupus community to reduce their symptoms with diet and healthy living.
05/10/2023 | Advice
08/17/2018 | Testimonial
No One Knows What Being Diagnosed with Multiple Sclerosis Is Like, So Maintain A Can-Do Attitude
09/27/2018 | Testimonial
Subscribe
You wish to be notified of new comments
You have been subscribed
mvn481
Good advisor
mvn481
Last activity on 09/02/2023 at 12:01 AM
Joined in 2018
70 comments posted | 25 in the Lupus Forum
Rewards
Good Advisor
Contributor
Messenger
Explorer
Friend
Hi all,
Just out of curiousity what medications have you tried for Lupus and what has been your success in terms of the treatment as in regard to side-effects.
I have been on Plaquenil; however, I am getting recently an increase in hair loss, stomach pain, and I feel I am much more irritable now.
Has anyone tried Aralen? Do you continue steroids?