- Home
- Share
- Forum
- Psoriatic arthritis Forum
- Living with psoriatic arthritis
- What is the most frustrating or difficult aspect of living with psoriatic arthritis?
Patients Psoriatic arthritis
What is the most frustrating or difficult aspect of living with psoriatic arthritis?
- 28 views
- 0 support
- 4 comments
All comments
ribston1
Good advisor
ribston1
Last activity on 01/20/2022 at 2:49 PM
Joined in 2018
31 comments posted | 12 in the Psoriatic arthritis Forum
1 of their responses was helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
@Courtney_J I think this has been brought up in other threads, but for me it's the chronic fatigue. I think because PA isn't a "visual" condition, some people just assume that I'm fine because they can't see anything overtly "wrong" with me with their bare eyes. People don't understand how debilitating chronic fatigue is and they think that if I just take a nap I'll be healed and ready for action. I can't be as active as I used to, I feel like my body has just like given up on me. This and the fact that I can't do anything to change the fatigue is what really frustrates me and makes me want to jump off a cliff some days.
JTsDad
JTsDad
Last activity on 08/07/2020 at 7:13 PM
Joined in 2020
4 comments posted | 4 in the Psoriatic arthritis Forum
1 of their responses was helpful to members
Rewards
-
Explorer
@ribston1 I agree, I've seen what the fatigue does to my son and I feel so helpless because there's nothing I can do to help. He's lucky that his company is being understanding and seems to be willing to make some arrangements for him, I can't imagine what it is like for those who don't have help from work or family.
kcsicsek
kcsicsek
Last activity on 03/26/2020 at 4:42 PM
Joined in 2020
2 comments posted | 2 in the Psoriatic arthritis Forum
Rewards
-
Explorer
To tell the truth I have not been dealing with psoriatic arthritis very well lately. COVID 19 has kept me at home and I have been depressed. I have not done much walking and I am stiff because of this. Now it is raining and cold and I am even more stiff and in pain. I actually thought I would sleep more, but have not been able to because of the pain. I have a doctor's appointment and I think she is going to prescribe bios. I hope! Methotrexate didn't do much for me. Humors didn't either. So I hope she haa something good in mind. What do you all think of Modafinil for the fatigue? The pain and swelling cause a major amount of basically exhaustion.
kcsicsek
kcsicsek
Last activity on 03/26/2020 at 4:42 PM
Joined in 2020
2 comments posted | 2 in the Psoriatic arthritis Forum
Rewards
-
Explorer
Humira not humors....spell check... ugh
Give your opinion
Members are also commenting on...
Articles to discover...
08/29/2018 | News
Are you interested in CBD oil to help manage your chronic condition?
10/29/2018 | Advice
09/08/2018 | Testimonial
Subscribe
You wish to be notified of new comments
You have been subscribed
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 15 in the Psoriatic arthritis Forum
6 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Explorer
Friend
Hello everyone,
How are you doing?
Psoriatic arthritis, like most chronic conditions, can challenge aspects of life and make one feel frustrated. I thought today we could discuss these challenges.
What is the biggest challenge you face while living with psoriatic arthritis? Is it the pain, the fatigue, the stiffness, or the psoriasis if you have it? Have you had to change aspects of your daily life or routine because of your PA? How do you cope with these challenges?
@Dltrj25 @Spiritaelove @Simplyq @Ksbiggers @AnnetteRoberts @kcsicsek @Mlbg601 @Cathywilson87 @Ginadw @Peggymae @venessahudson @Kaykayloveee @blade697 @sirtaki @deuce26 @juliusnba @meganfuzzell @Tgurrola
Feel free to share here!
Take care,
Courtney