Patients Acromegaly

What is your acromegaly story? Let's share!

19 views
0 support
1 comment

Courtney_J

Community manager

07/22/2020 at 12:00 AM

Good advisor

Courtney_J

Community manager

Last activity on 08/08/2022 at 11:09 AM

Joined in 2020

1,340 comments posted | 6 in the Acromegaly Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend

View profileView Add a friendAdd Write

Hello everyone,

How are you today? emoticon cute

I thought I would open this discussion so that we can get to know one another better!

So, what is your acromegaly story? When and how were you diagnosed? Did you receive your diagnosis right away or did it take multiple doctors to diagnose it? What treatments have you tried and how are you doing today? Do you have any advice to share with someone newly diagnosed

‍Feel free to share your story, experiences or advice with us here!

Take care,
Courtney

All comments

Cora52

Edited on 07/23/2020 at 6:33 PM

Cora52

Last activity on 12/11/2020 at 6:03 PM

Joined in 2020

9 comments posted | 7 in the Acromegaly Forum

Rewards

Contributor
Explorer

View profileView Add a friendAdd Write

@Courtney_J Hi Courtney, I had acromegaly a number of years before I saw the signs. It wasn't until I couldn't put my rings on anymore that I really knew there was a problem. I ended up getting diagnosed pretty quickly, after a blood test for growth hormone, a suppression test and then an MRI to see the ptiuitary tumour. I've really struggled with my body image with all of this, looking at old photos of myself can make me burst into tears because I don't feel like I'm who I used to be anymore. I couldn't have an operation at the time so I've been doing radiation and sandostatin to control the GH. I've seen some improvement but I'm hoping to convince my doctor to do surgery eventually.

What is your acromegaly story? Let's share! https://www.carenity.us/forum/acromegaly/living-with-acromegaly/what-is-your-acromegaly-story-lets-share-2247 2020-07-23 18:32:57

Members are also commenting on...

Articles to discover...