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- When were you diagnosed with AS? What were your symptoms?
When were you diagnosed with AS? What were your symptoms?
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Lee__R
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Lee__R
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Last activity on 04/03/2020 at 5:04 PM
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1,337 comments posted | 26 in the Living with ankylosing spondylitis group
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Hello members, does anyone have any input? @Athijssen @nomasAS @fraskb @rwilsonjr67 @Anjelkiss @DuchyCT @Edelweiss70 @Mbaulch

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prolonged back and hip pain, multiple doctors and PT, Xrays etc until finally one doctor suggesred AS and started looking for that specificly
Mbaulch
Mbaulch
Last activity on 09/25/2021 at 10:11 PM
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7 comments posted | 7 in the Living with ankylosing spondylitis group
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i developed severe sacroilliac and left sciatic nerve pain with severe weakness and shortness of breath. After being told to start walking I told my doctor I had a nephew who had had AS, He actually committed suicide at age 30. I was tested for the gene and had an MRI that showed that my bones had already changed.
JTom4cats
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JTom4cats
Last activity on 03/24/2025 at 12:27 PM
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@Lee__R
I experienced severe back pain in my mid-20's. Worked thru that with Tylenol. In my low 30's I had sciatic pain to the point I was bed-ridden for days at a time. After seeing several orthopedic doctors I finally went to a Osteopath who did some investigating and determined I has AS. Been seeing a Rheumatologist for many years and have been on Enbrel for almost 20 years
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Lee__R
Community managerGood advisor
Lee__R
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Last activity on 04/03/2020 at 5:04 PM
Joined in 2018
1,337 comments posted | 26 in the Living with ankylosing spondylitis group
2 of their responses were helpful to members
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The common early symptoms of ankylosing spondylitis include pain that exists for more than three months and back pain and stiffness that worsens with immobility.
However, the age of onset and warning signs / initial symptoms of ankylosing spondylitis experienced can vary from person to person.
What was your age when you experienced the onset of Ankylosin Spondylitis?
What were the warning signs / early symptoms that made you seek out medical advice?