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Parsonage-Turner Syndrome treatment
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Somya.P
Community managerGood advisor
Somya.P
Community manager
Last activity on 01/21/2025 at 9:34 AM
Joined in 2023
483 comments posted | 1 in the Cold Agglutinin Disease Forum
16 of their responses were helpful to members
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Hi @hesham, thank you for starting this discussion! 😊
Parsonage-Turner Syndrome can be really tough to manage, and treatments usually focus on pain relief and physical therapy to help regain muscle strength and function. Has your doctor recommended any specific therapies or medications so far?
I'll try tagging a few members of our rare diseases community to see if they have any experiences with this:
For anyone who’s dealt with Parsonage Turner Syndrome, what treatments or exercises have been helpful for you?
@avaheavely @asaan32 @Breeanna42 @trivers41 @PM1DYR @mcheney1214 @Paulamac @Charrell10835 @mickey @Walnutteacher2 @Jlknight @brag1710 @Mark-IL @JulieKegg @Victoriasusan @brentfordfc @setrinm @Barb440 @uncleanatol @Victorialove @Mstrice @Jennieshireman @LDaley @Candice.S @SpencerJohnston @Christa.J @luvsdolfins @AlphaBehemonth @nurseperl1123 @Livingston @Gmamoe19 @Kprice8529 @Gallardo @jieyang @Cecilia @TracyyS @lynbartelt @juhachem @Cybele @Robwoods @Adouet123 @MightyNcy @JamieStieve @jie-fb @Bobswife4ever @Becholz66 @AngelaHerron @wgexsa @MichelleM12 @Lilsazonepackett @Paige9499 @Menateet72 @melodypreference @Jennlrose826 @trinkal1984
Feel free to share your tips, personal experiences, or even ask questions!
Take care,
Somya from the Carenity team 🌼
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hesham
hesham
Last activity on 10/27/2024 at 4:58 AM
Joined in 2024
Patient, Parsonage-Turner syndrome since 2024
Other condition: Transient ischemic attack
1 comment posted | 1 in the Cold Agglutinin Disease Forum
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Any advise about best treatment methods for parsonge turner syndrome case