How did you handle your immune thrombocytopenic purpura?

Hi @sophiejane

I think what you shared is really relatable. Sometimes it's a relief to know there is a reason for why you feel the way you do aka having a diagnosis. But then again, once I learned about it, my existence became so closely tied to the disease, like "Hi its me, I have a chronic illness but I also like sports and reading, and have a family." Sometimes knowing makes it worse because it is now something that defines who you are. But I guess thats life, you know. So people are tall-others short. Some have bodies that work better than others....Anyway I just wanted to comment because its important that we find our community, share our stories with others, and be advocates for the few of us that we know.