Patients Infection / Inflammation / Immune system
feeling trapped by the ticking time bomb quality of life with my lupus family tree
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Joined in 2018
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As of yet I have yet to be diagnosed with lupus. I clicked the interested button because there was nothing else that fit my situation better. concerned and stressed out would be a better fit.
both my mom and my sister have severe cases lupus (my sister having another one as well that i can never remember the name of) and there is a history of familial deaths due to it.
my sister's diagnosis was a few years ago, and my mom's about a month or two ago.
my sister has had her kidneys almost shut completely down before and one of our ancestors died because it attacked his brain.
i am too afraid to get test ed because of what might come up and don't want to ask the family's doctor. I'm afraid of the statistics and rarely sleep at night because of all the stress.
i am unsure what to do. I trust my family an my doctor but have never been comfortable with opening up to people about what i'm going through.
i don't know what to do or who to go to. i need support and guidance.