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MS "hugs": Have you experienced them?
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Miss_MS
Miss_MS
Last activity on 02/17/2021 at 11:21 PM
Joined in 2020
3 comments posted | 2 in the Multiple sclerosis Forum
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@Courtney_J I just got a chance to read the article, thank you for sharing! I hadn't heard of the term before, but I've definitely experienced the sensation. The "boots" feeling too. Next time I have a "hug" I'll give the tight clothing a try.
Has anyone else had this? Did any of the tips in the article help?
Cbeard4176
Cbeard4176
Last activity on 03/25/2021 at 9:53 PM
Joined in 2021
1 comment posted | 1 in the Multiple sclerosis Forum
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Hello, new here.
I have been xperiencing "MS Hugs" for the last 18 years and I've yet to find the "trigger". I've had them while sleeping, driving, basically at the most inopportune times. For me, it feels like a boa constrictor wrapped tightly across my ribcage or an extremely painful bear hug. Luckily, the muscles release in about 10 minutes. I have tried EVERYTHING imaginable to relieve them when they come on due to the horrendous pain and extreme difficulty catching my breath. What usually works is to apply pressure similarly to when you get a Charlie horse. If it's possible, I'll have someone wrap their arms around me to force the muscles to release. If I'm alone, I've resorted to very desperate measures that most would find questionable. But, if you've experienced these cruelly named "MS Hugs", you'll do just about anything to make them go away. I've had no luck with Baclofen or Zanaflex and Neurologist is now looking into Botox.... fingers crossed.
I hope for a better outcome for you because it's the worst 😞.
stellalynnch
stellalynnch
Last activity on 03/10/2025 at 10:23 AM
Joined in 2025
Patient, Multiple sclerosis since 2025
2 comments posted | 1 in the Multiple sclerosis Forum
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I was living with MS for years before being officially diagnosed in 2021. I got annual MRIs, and I did not take any meds due to side effects. I had one flare up in 2021. My legs decided to a break, and I was numb from the waist down. I decided to try MS-4 from Uine Health Centre. The numbness and Muscle spasms went away after a couple of weeks, but it took almost 3 months to walk properly without a cane. In June, it will be four years without incident, and I am extremely happy that I made the decision to not take any meds and went for the MS-4 formula even though my neurologist got upset and one told me to quit my job because I will be disabled. Well, I am not disabled, I still refuse to take those meds, and I am doing just fine. Believe in yourself and go with your instincts. Doctors don't know it all. I’m surprised a lot of people with MS haven’t heard of the MS-4 protocol, I got the treatment from uinehealthcentre. com I am absolutely confident that this protocol offers a viable solution. I hope you find it helpful.
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Courtney_J
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Courtney_J
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Last activity on 08/08/2022 at 11:09 AM
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1,339 comments posted | 96 in the Multiple sclerosis Forum
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Hello everyone,
How are you today?
I thought I'd open this discussion to talk about an MS symptom that many people have a hard time describing: the MS hug. MS hugs vary from patient to patient, but it generally describes an uncomfortable feeling of tightness or pressure around the chest and torso.
To learn more about the causes, symptoms and treatments for MS hugs, feel free to take a look at our latest article here: MS Hugs: What are they and how to live with them?
Have you experienced an MS hug? What did it feel like to you? How do you manage them?
@bawannajim @AaronMc @Adene66 @LLYDDON @Teddylynnprince @Lorimarie65 @Shequit2020BBFLY20 @LouKing @Cembre21 @RachelRay @Wellsville_mom @richjh @EROC2113
Feel free to share your thoughts and experiences here!
Take care,
Courtney