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Have you tried Lemtrada for multiple sclerosis?
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Courtney_J
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Courtney_J
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Last activity on 08/08/2022 at 11:09 AM
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1,340 comments posted | 96 in the Treatments for multiple sclerosis group
6 of their responses were helpful to members
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Hi @xxmyye, thank you for opening this discussion. Let me tag some other members who can possibly share with you.
Hi everyone, for those of you who have been on Lemtrada for your MS, can you share your experience? Has it been effective? Have you had any side effects? How often are your infusions?
@Brenda05 @mennisphiad @WILLIAMSJANET @blehn9042 @agorzelsky @anitabekarr @KrapothS @nk2222 @Miamio123 @sammi.ray @emmemm12 @djbehret @Letschat @Jwelden @Rebeccaglenn @HashnMemms @Branden3387
Take care,
Courtney
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Courtney_J, Community Manager, Carenity US
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@Courtney_J Hi, I hope everyone is well! I would also greatly appreciate any insight on Lemtrada!
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WILLIAMSJANET
WILLIAMSJANET
Last activity on 06/08/2022 at 5:57 PM
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1 comment posted | 1 in the Treatments for multiple sclerosis group
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Hi, I have tried Rebif and Tecfidera. Tecfidera is working for me. I have had no progression for 2 years. It does cause facial flushing, and stomach upset. I take an aspirin for the flushing and I take omeprozole for the stomach upset. I make sure I take the pills twice daily at the correct times.
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J. Will
phyllis
phyllis
Last activity on 12/10/2021 at 1:41 AM
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4 comments posted | 3 in the Treatments for multiple sclerosis group
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What can you do for stress for MS??
xxmyye
xxmyye
Last activity on 01/26/2022 at 11:05 AM
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6 comments posted | 6 in the Treatments for multiple sclerosis group
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@phyllis deep breathing and meditation
Rjackson
Rjackson
Last activity on 08/12/2022 at 1:27 AM
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2 comments posted | 2 in the Treatments for multiple sclerosis group
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@Courtney_J @Courtney_J I have done Lemtrada, First dose in 2017 second dose 2018. I am now age 63, diagnosed age 40.
Blancagirl
Blancagirl
Last activity on 09/08/2024 at 2:30 AM
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2 comments posted | 2 in the Treatments for multiple sclerosis group
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Has anybody tried Ampyra to help with walking? If so what has your experience been? Thank you
LizziB
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LizziB
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Last activity on 04/21/2024 at 8:17 PM
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603 comments posted | 35 in the Treatments for multiple sclerosis group
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Hello everyone,
@xxmyye @WILLIAMSJANET @phyllis @Rjackson @Blancagirl
How are you doing today?
I see that there was a short discussion regarding treatment for MS. I wanted to follow up with this thread and let everyone know about a new feature on Carenity. You can now leave reviews for your current and past medications. https://member.carenity.us/medications
By clicking on this link you can search by condition or by the medication directly. Then follow the prompts to leave your experiences and help other members be more informed.
Take care,
Lizzi from the Carenity team
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LizziB
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xxmyye
xxmyye
Last activity on 01/26/2022 at 11:05 AM
Joined in 2021
6 comments posted | 6 in the Treatments for multiple sclerosis group
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Who has taken lemtrada? Is anyone else on this? Are there any side effects or anything I should know about?