Fingolimod (Gilenya): Have you experienced side effects?

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Emma2190

03/11/2020 at 3:29 PM

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Emma2190

Last activity on 07/04/2022 at 1:29 PM

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Hi all, I know it has been a long time since I posted here or talked. My depression has become worse than before, moods shifty and all over the place along with pain all over. They put me on Gileyna on March 2nd and now been taking it daily since then. What I need to know from someone with experience regarding Gileyna is does it make you really light headed(since I have been lately) and if so, how long does this last? Feel free to send me a message or reply here and thank you. ~Emma

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Tracy23

03/12/2021 at 6:10 PM

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Tracy23

Last activity on 02/16/2025 at 8:35 PM

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@Emma2190‍

Kesimpts is a monthly self injection, it is pretty much the same as Ocrevas.

Fingolimod (Gilenya): Have you experienced side effects? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/long-overdue-update-1631 2021-03-12 18:10:44

Emma2190

03/12/2021 at 6:24 PM

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Emma2190

Last activity on 07/04/2022 at 1:29 PM

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94 comments posted | 70 in the Treatments for multiple sclerosis group

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@Tracy23 Ah, no thank you then but hope it works out for you. Been on self injections Capaxone then Rebif and both failed after a while which resulted in more lesions from more flare ups or whatever that fancy e word is the doctors use.

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Just trying to get by..

Fingolimod (Gilenya): Have you experienced side effects? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/long-overdue-update-1631 2021-03-12 18:24:14

Tracy23

03/12/2021 at 6:29 PM

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Tracy23

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@Emma2190‍

sorry to hear all that. This will be my first time ever going on a treatment & dr recommend so going to give it a shot. Hard decisions to make cuz when you talk to people everyone has had some bad effects from all the different treatments out there. Fingers crossed for me and hope all will be well with you.

Fingolimod (Gilenya): Have you experienced side effects? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/long-overdue-update-1631 2021-03-12 18:29:43

Emma2190

03/12/2021 at 7:07 PM

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Emma2190

Last activity on 07/04/2022 at 1:29 PM

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@Tracy23 Thanks and same to you!

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Fingolimod (Gilenya): Have you experienced side effects? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/long-overdue-update-1631 2021-03-12 19:07:44

LizziB

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04/05/2023 at 12:18 PM

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LizziB

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Hi @Emma2190 @Cgonlag @Marques @Tracy23

How are you doing?

I see that you have had a discussion about Gilenya. Ocrevas and Kesimpta were also mentioned. I'd like to invite you all to leave your experiences here: https://member.carenity.us/medications

Carenity's new feature allows members to talk about their medications all in one place! Tell us about your side effects, the effectiveness of the medication, among other characteristics.

Leave your review today!

Take care,

Lizzi

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LizziB

Fingolimod (Gilenya): Have you experienced side effects? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/long-overdue-update-1631 2023-04-05 12:18:46

Fingolimod (Gilenya): Have you experienced side effects?

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