Patients Neurofibromatosis

What are the most troubling symptoms and complications?

6 views
0 support
1 comment

Lee__R

Community manager

05/26/2019 at 6:16 PM

Good advisor

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,338 comments posted | 3 in the Neurofibromatosis Forum

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend
Top chef

View profileView Add a friendAdd Write

Hi everyone,

Neurofibromatosis is a condition that can cause tumors to form in the brain, spinal cord, and nerves, which can cause varying symptoms and complications.

What are the most troubling symptoms and complications? What do you wish you could get rid of and/or change?

All comments

rickybobby

06/01/2019 at 4:49 AM

rickybobby

Last activity on 01/17/2023 at 12:40 PM

Joined in 2019

4 comments posted | 3 in the Neurofibromatosis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

This is a great question. I have NF 1, what about others? Anyone else with NF 1?

My many issues were delayed learning when I was young, permanent scoliosis, and high blood pressure, and of course cafe-au-lait spots - most prominently around my lip :(

What are the most troubling symptoms and complications? https://www.carenity.us/forum/neurofibromatosis/symptoms-and-complications-of-neurofibromatosis/what-are-the-most-troubling-symptoms-and-compl-1043 2019-06-01 04:49:41

Members are also commenting on...

Articles to discover...