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Patients Neurofibromatosis
Have you had surgery to remove problematic growths and/or tumors? Share your experience
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rickybobby
rickybobby
Last activity on 01/17/2023 at 12:40 PM
Joined in 2019
4 comments posted | 3 in the Neurofibromatosis Forum
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Hi Lee. Yes. I did have surgery to remove a tumor close to my spinal cord. It caused me great pain and angst... however, I go it removed. Not sure if the tumor caused it, I was younger then. But I have permanent scoliosis.
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Lee__R
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Lee__R
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Last activity on 04/03/2020 at 5:04 PM
Joined in 2018
1,338 comments posted | 3 in the Neurofibromatosis Forum
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Hi everyone,
while there is no cure at this time for neurofibromatosis, one of the more common treatments is an operation to remove problematic growths or tumors. Such an operation, and the therapy after, can be challenging and concerning.
Have you had surgery to remove problematic growths or tumors? Where was the tumor or growth? How was the operation? How was the recovery?
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