- Home
- Share
- Forum
- General forums
- Good to know
- How do you talk to your children about your condition?
How do you talk to your children about your condition?
- 29 views
- 2 times supported
- 6 comments
All comments
Mrspeedy
AmbassadorGood advisor
Mrspeedy
Ambassador
Last activity on 11/24/2024 at 8:17 PM
Joined in 2019
186 comments posted | 39 in the Good to know group
14 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Committed
-
Explorer
-
Evaluator
I don’t have kids or younger family members
See the signature
Jason McNeil
Adamschiffer
Adamschiffer
Last activity on 11/17/2024 at 11:08 PM
Joined in 2020
2 comments posted | 2 in the Good to know group
Rewards
-
Committed
-
Explorer
I have had discussions with my wife and two boys about my illness. I have been very careful to tell them that it isn’t genetic and just because I have it doesn’t mean that they are going to have it.
Close all
See the responses
Somya.P
Community managerGood advisor
Somya.P
Community manager
Last activity on 11/22/2024 at 9:23 PM
Joined in 2023
385 comments posted | 148 in the Good to know group
16 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
@Adamschiffer Thank you for sharing! It can be a tough conversation, but it’s great that you’ve approached it so thoughtfully. If you don't mind sharing more, how did they respond when you first brought it up?
See the signature
Somya from the Carenity team
Hide the responses
Adamschiffer
Adamschiffer
Last activity on 11/17/2024 at 11:08 PM
Joined in 2020
2 comments posted | 2 in the Good to know group
Rewards
-
Committed
-
Explorer
I’ve been diagnosed with SPMS for some 29 years. I’ve been married a little over 28 years and we have two boys together, a 26 year old and a 17 year old. I’ve been quite open about my health with them and tried to explain every symptom of MS I have and/or get.
I tell my kids that it isn’t genetic and they are not very likely to end up with MS. A little bit more likely because I have it than the average bear but it is still under 1% for them.
Close all
See the responses
Somya.P
Community managerGood advisor
Somya.P
Community manager
Last activity on 11/22/2024 at 9:23 PM
Joined in 2023
385 comments posted | 148 in the Good to know group
16 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
Hi @Adamschiffer,
Thank you for sharing your story. It’s great that you’ve been open and honest with your boys about your MS, it must bring some peace of mind to know that their risk is still very low. How have they responded to learning about your condition over the years?
Take care,
Somya from the Carenity Team 🌼
See the signature
Somya from the Carenity team
Hide the responses
Chadshep
Good advisor
Chadshep
Last activity on 11/17/2024 at 11:57 PM
Joined in 2021
5 comments posted | 1 in the Good to know group
1 of their responses was helpful to members
Rewards
-
Good Advisor
-
Explorer
-
Friend
I don't tell anyone only my wife knows it's a struggle with myself so I don't put my problems on others I just deal best I can
Give your opinion
Articles to discover...
11/23/2024 | News
11/18/2024 | News
Drugs and libido: Which treatments can affect your sexual desire?
11/08/2024 | Advice
02/20/2019 | Advice
Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid
03/11/2019 | News
04/15/2019 | Advice
02/14/2019 | Advice
Subscribe
You wish to be notified of new comments
You have been subscribed
Somya.P
Community managerGood advisor
Somya.P
Community manager
Last activity on 11/22/2024 at 9:23 PM
Joined in 2023
385 comments posted | 148 in the Good to know group
16 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Explorer
Friend
Hello everyone,
How are you doing today?
Talking to children about your health condition can be very difficult. You want to be honest, but it’s not always easy to find the right words or know how much to share.
How have you explained your illness to your children or younger family members? What tips do you have for discussing serious health topics in a way that’s age-appropriate and reassuring?
@Susan-Jane @Dcass22 @Kayla8 @Steve1697 @Charrell10835 @Dgra417 @Mommaz @TinaMcdowell1973 @shhiggins326 @Painful311 @NavyMom0904 @Jessie135 @Mrspeedy @Beelllaa96 @Bailey92 @Toyox26 @mommaof2 @biancaolivas22gmail.com @kaitlynsavard @Jmerritt @ShannieJ @GregFrakes @TiffanyBoydston @MonaJane @NikkiDilliner @jlawrence2686 @November @Ealicea2339 @klt1984 @mikeand75 @Whizper @griffin43 @abbykab @taustin8997 @Fiona82 @Adamschiffer @Jamie0406 @Emmarose75 @Ximena1218 @dan.varady @nikki42 @Tammon71 @letitworkitselfout @Cheermom70 @chrissyburke @Jackie1981 @nikki1974 @Tnd121798 @CHICKEN @rosienarv @Geetika @Christa.J @Edparks32 @sflorez77 @Kathyl @Scottleager @Soulfly1 @maradenski @Diego82 @doomiii @Sikrissybk524 @Cookie! @Taco26 @Dobbsmom @Alyssalukas23 @mmjepsen1969 @Sunset94 @Melleepippin @Bettyphillips @Anadrew @Chrispalmer73 @ghetto6905 @Melon'sMama @RobertsJ1992 @andreadreamer @Avasdad @jpgilger @Lovelylesslie @Ldurham @Fleet5 @Mcastro26 @jrosellagain @paulsarahwin @DeAnn99 @djmercer @tammyru2005 @grace73p @kisslamarre @Somya.P @MelStill78 @KenWeed43 @SleepBetterNation @Hdymond @Kim761 @Sueof3 @jenneighbs @melonsmama @Smilerml @ColHenry @Amandatd
Your experiences could help others navigate this sensitive conversation. Looking forward to hearing your thoughts!
Take care,
Somya from the Carenity team 🌼