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Patients Ankylosing spondylitis
Are you in a support group? Share with others
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AS1218
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AS1218
Last activity on 02/05/2024 at 1:39 AM
Joined in 2018
56 comments posted | 31 in the Ankylosing spondylitis Forum
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I go to a group in my church, which is a support group for those in chronic pain. We meet at various locations once a week. We rotate meeting at people's houses, for those who are in too much pain or it is too difficult to meet outside of their home. Also, we SKYPE/FACE TIME with those that can't make it for whatever reason.
It helps me mostly with depression and feeling alone. Nobody in the support group has AS. A few have chronic pain from surgeries or an injury; Some have cancer and other conditions; a few have Fibromyalgia.
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CDKennedy
I am in the severe range now at 74 yrs old. I have found thru trial and error and getting older with SA, I sleep on my back because I can hardly turn to my side now. I also take 10 mg Melatonin. I didn't know it came in 20 mg! (Thanks ladyslipper 67) What has really help with my back pain, when in bed, is a large memory foam wedge. The large end is under my knees and my legs go down to the small end. It doesn't move when I sleep but then again I am not turning over back and forth. This takes the pressure off my back. I hope this helps someone.
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CDKennedy
I am in the severe range now at 74 yrs old. I have found thru trial and error and getting older with SA, I sleep on my back because I can hardly turn to my side now. I also take 10 mg Melatonin. I didn't know it came in 20 mg! (Thanks ladyslipper 67) What has really help with my back pain, when in bed, is a large memory foam wedge. The large end is under my knees and my legs go down to the small end. It doesn't move when I sleep but then again I am not turning over back and forth. This takes the pressure off my back. I hope this helps someone.
See the best comment
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Lee__R
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Lee__R
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Last activity on 04/03/2020 at 5:04 PM
Joined in 2018
1,338 comments posted | 26 in the Ankylosing spondylitis Forum
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Hello everyone,
Living with a physically debilitating disease, such as Ankylosing Spondylitis, can be very difficult and demanding as it tends to impact not only one's physical health, but also one's mental and emotional health. It also tends to impact one's social life, as many chronic conditions tend to do.... Dealing with a more rare condition, such as Ankylosing Spondylitis, can increase the challenges and burden one may face; According to the statistics, only approximately 1% of the population in the United States have AS.
Therefore, it can be very beneficial for individuals diagnosed with Ankylosing Spondylitis to join a support group.
Besides Carenity, are you part of a support group? Is it a support group dedicated just to AS?
How often do you go? Have you found comfort and support there?
If you are not in a support group, why not?
Please share your story and experiences with one another.