- Home
- Share
- Forum
- General forums
- Living with Crohn's disease
- What is your Crohn's disease story? Let's share!
What is your Crohn's disease story? Let's share!
- 38 views
- 1 support
- 4 comments
All comments
keeppushingon
keeppushingon
Last activity on 11/15/2022 at 11:48 AM
Joined in 2018
9 comments posted | 9 in the Living with Crohn's disease group
Rewards
-
Contributor
-
Explorer
@Courtney_J Hi, I was diagnosed with Crohn's about two years ago now after being misdiagnosed with IBS for several years. I'm currently on Imuran which is working pretty well, but I still have some bad flares from time to time. Not sure if I can help anyone since I'm still relatively new to Crohn's, but if anyone wants to talk or has questions I'm here! :)
rachelle4evr
Good advisor
rachelle4evr
Last activity on 03/15/2023 at 2:16 PM
Joined in 2018
33 comments posted | 27 in the Living with Crohn's disease group
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
@Courtney_J @keeppushingon I was diagnosed as a teen. I'd been having a lot of stomach pain and fatigue and a few almost "accidents" kept me running to the bathroom all the time. My sophomore year of high school I missed a lot of school and my grades really suffered because I was too tired to really pay attention. It was horrible. I tried a few different diets but nothing really worked so I went to my doctor who directed me to a gastroenterologist. After an endoscopy and colonoscopy we were sure it was Crohn's. I've been through a few meds but now I'm on Stelara. I still have flares occasionally but overall it's better. It's definitely taken a toll on my mental health, I deal with quite a lot of anxiety and some depression.
Horserider
Horserider
Last activity on 10/29/2024 at 4:46 PM
Joined in 2020
14 comments posted | 3 in the Living with Crohn's disease group
Rewards
-
Contributor
-
Explorer
-
Friend
In 2009, I started experiencing cramping and diarrhea. I went to my family doctor and he told me it was IBS and prescribed me Lomotil, and it helped with the symptoms, but it didn't solve the problem.
In 2010, the symptoms got worse and he sent me for a CT scan and by the time I went, I was so sick, I had a temperature of 104°and they found ulcerations in my large and small intestines. The hospital techs informed my doctor and recommended that I be admitted, but he refused and sent me home and referred me to a GI specialist the next day. Luckily, he admitted me and ran more tests and confirmed it was Crohns. At the time I was diagnosed, my GI doctor never fully explained what exactly what Crohns was, so most of what I learned was online sites like Mayo clinic or Web MD or online support groups.
He started me on Prednisone for 6 months, Imuran, Vemlide (because I have Hepatitis B) it keeps me from going into liver failure because of the biological, and Humaria, which I only tolerated for 2 years.
My Rheumatologist also had me on different medications for my Osteoarthritis and as a last resort, she put me on Remicade Infusions and since it's also used for Crohns, my GI doctor kept me on it. Surprisingly, with all the intestinal problems, I never lost weight, I always was overweight, until 2017, I started having problems with my stomach when I'd eat, I'd get severe stomach pains. I called my GI doctor 3 times and he refused to see me and it got to the point that I couldn't eat hardly anything at all and I ended up losing 60 pounds. I left his practice and my Rheumatologist referred me to a new doctor and he's wonderful!!
I learn new things everyday about this disease and am always looking for answers. I have other medical issues other than my Crohns and don't know if the symptoms that I have are all intertwined.
See the signature
Jennifer McCormick
Unregistered member
in my 20s I had a lot of GI issues and was told I had IBS. I was told to live with it. I finally had enough when I had over 10 bathroom runs in 3 hours. I told my doctor to give me a referral to a GI. After about 5 years I finally got my Crohns diagnosis. After trying different meds, I’ve been on Humira weekly for about a year. I still have flares but not as often before.
Give your opinion
Articles to discover...
11/04/2024 | News
10/21/2024 | News
Common health issues in pregnant women: Everything you need to know!
10/19/2024 | Nutrition
Turmeric: The golden source of anti-inflammatory and antioxidant benefits
10/12/2024 | News
02/20/2019 | Advice
Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid
03/11/2019 | News
04/15/2019 | Advice
02/14/2019 | Advice
Subscribe
You wish to be notified of new comments
You have been subscribed
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 23 in the Living with Crohn's disease group
6 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Explorer
Friend
Hello everyone,
How are you today?
I thought I would open this discussion so that we can get to know one another better!
So, what is your Crohn's disease story? When and how were you diagnosed? Did you receive your diagnosis relatively quickly, or did you have to see multiple doctors? What treatments have you tried for it? How are you doing today?
@SabinaYetta52 @subtlerose @Tracyfillad38 @Jeffrey @madisonj688 @Callie22 @Geo2077 @rythm4hall @Samifrogg @uhhhian @Kfor1992 @emmahayes6 @Shikamaru11 @Jadaneal00 @fitstart74 @Julesbird58 @lisa_searle @JasonMcCabe730
Take care,
Courtney