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How do you cope with the day-to-day struggles of living with lupus?
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LizziB
Community managerGood advisor
LizziB
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Last activity on 04/21/2024 at 8:17 PM
Joined in 2022
603 comments posted | 7 in the Lupus Forum
24 of their responses were helpful to members
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Hi @LuLupin
How are you doing today?
Thank you for getting this discussion started. I think many living with chronic illnesses would say the same. Sometimes the unpredictability of the disease keeps you on your toes, but a bit too much... I will tag a few members who may be able to share their routines and how they keep their lives stable.
@Kadi2022 @Cwitton1 @Barbara918 @PattiR @ElinorCody @Sly_0127 @Hittani @Jdaug7961 @giaadluca @LiseDemo @VeeElCee @Henrycarlos @TracyyS @AnneStan @Blueberry37 @GigiSmilez @diana1ms @Jamiemomma @MSlupuswarrior @lmustang89 @Danilola @Nclady1966 @Maria1958 @Maryann7 @AmberRussell @Rachelsara @Kprice8529 @BettyBorsukoff @CIDP_Beth @Debgaudy @Destiny415 @Stepb1 @Shanar @Pixiestyx @JoinerD @Marnetta @Nylahkay21 @Natassia @Twettybird @apriljaycox @Heyzil @amyrose @Shielab26 @Yayaya @Bijoux @cmmusiclover @Christa.J @gmail.com @heathermaupin0 @Jzagorski @mickey
Do you find yourself successfully controlling your lupus? How have you learned to live with unpredictable flares? What have your incorporated into your daily habits that help with the symptoms?
Any tips or advice would be helpful for @LuLupin !
Take care,
Lizzi from the Carenity team
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LizziB
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LuLupin
LuLupin
Last activity on 10/07/2024 at 6:09 PM
Joined in 2023
1 comment posted | 1 in the Lupus Forum
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I am still struggling with the pain and the unpredictability of flares. I have been living with lupus for years but still feel like I do not manage it. It is still managing me. How do you cope ??? What are your secrets/tips for getting through the day? I feel like its a losing battle and I'm depressed.