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What were your symptoms and how long did it take for diagnosis?
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padres44
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padres44
Last activity on 11/08/2023 at 11:18 AM
Joined in 2018
32 comments posted | 23 in the Living with Multiple Sclerosis group
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@LynndMS it is scary @LynndMS ... I think you said you had children in another post, right? Are they around?
The whole disease, progression, and prognosis is scary!
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I have a 32 year old son who is married with a 3 year old. Unfortunately I’m 80 miles away from him and his wife wants no part of helping ... I have two sisters with the same affliction as my daughter in law. You can’t make people care or help .... I try to take one day at a time.
msslady
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msslady
Last activity on 05/26/2020 at 7:09 PM
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37 comments posted | 30 in the Living with Multiple Sclerosis group
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@LynndMS I am sorry @LynndMS . You are right... we cannot make people want to help us... I understand my family and friends who I tire with my emotions and physical pain/complaints... I understand it wears them down... but nothing is as wearing down as what we bear every day.
How is the weather where you are? Have you been able to get out and enjoy the beauty of nature? I also find just relaxing and sensing nature for some reason helps.
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broadwaylady
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broadwaylady
Last activity on 12/06/2022 at 3:49 PM
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34 comments posted | 28 in the Living with Multiple Sclerosis group
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Hey all,
I think most of us can agree that diagnosis of MS is not a quick process, especially when dealing with a general physician who is not really listening to your symptoms or not knowing what the diagnosis should be.
For me, it took several years to be finally diagnosed. The beggining symptoms were the feeling of fatigue and problems with my vision. Then came the numbness and tingling in my face and legs.
I remember explaining the symptoms to my general doctor for years, but maybe because I had back pain also, the doctor did not further investigate my above symptoms. I also switched doctors, but no avail - it was the same thing!
I finally went to the ER one night because I Was getting intense electric shocks into my legs and ended up falling. When I explained that I had been having bladder issues and a severe sense of dizziness lately, in addition to the other symptoms, they immediately sent me for an MRI.
After discharge, I was scheduled to see a neurologist who performed an EMG about a month later. A few months later, after a neurological exam, a brain MRI, a lumbar MRI and puncture, and some other tests, it was confirmed to be MS.
It was a long journey, and I often felt like I would never know what was wrong with me. I hope this forum can help others searching for a diagnosis or clear up worries.