Home
Share
Forum
Multiple sclerosis Forum
Treatments for multiple sclerosis
What medication, therapy, or alt. treatment that helped the most?

Back

Patients Multiple sclerosis

What medication, therapy, or alt. treatment that helped the most?

118 views
1 support
13 comments

Lee__R

Community manager

07/23/2019 at 5:57 AM

Good advisor

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,338 comments posted | 84 in the Multiple sclerosis Forum

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend
Top chef

View profileView Add a friendAdd Write

There are various types of medications, therapies, or alternative treatments that are said to control or reduce multiple sclerosis symptoms.

Which have you found that has helped the most? What benefits have you seen?

Share and discuss with others and help share advice and support.

All comments

Go to the last comment

msslady

09/21/2019 at 11:52 PM

Good advisor

msslady

Last activity on 05/26/2020 at 7:09 PM

Joined in 2018

37 comments posted | 30 in the Multiple sclerosis Forum

Rewards

Good Advisor
Contributor
Explorer

View profileView Add a friendAdd Write

I am taking Copaxone. I had also taken rituximab for RMS.

I have minimal side effects from the treatment... lots of fatigue and shortness of breath. But the doctor says it is working in slowing the progression. So I am hopeful it continues to do so.

What medication, therapy, or alt. treatment that helped the most? https://www.carenity.us/forum/multiple-sclerosis/your-opinion-on-multiple-sclerosis-treatments/what-medication-therapy-or-alt-treatment-that-1189 2019-09-21 23:52:07

MS_283

09/23/2019 at 2:32 AM

Good advisor

MS_283

Last activity on 11/23/2022 at 9:27 AM

Joined in 2018

57 comments posted | 36 in the Multiple sclerosis Forum

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

I am also on Copaxone and have not had shortness of breath as a side effect but definitely fatigue. I'm hopeful for the same@msslady

Cgonlag

03/06/2020 at 7:58 PM

Cgonlag

Last activity on 04/21/2020 at 7:34 AM

Joined in 2020

3 comments posted | 3 in the Multiple sclerosis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

Has anyone taken Ocrevus or Gilenya? I am currently on Tysabri but I tested positive for the JC Virus so I have to switch meds.

See the signature

Carrie

Monkey

03/07/2020 at 3:51 PM

Monkey

Last activity on 02/20/2021 at 5:59 AM

Joined in 2020

8 comments posted | 8 in the Multiple sclerosis Forum

Rewards

Contributor
Explorer
Friend

View profileView Add a friendAdd Write

@Cgonlag I do take ocrevus and it does work. but it tends to wear off at the end of 6 months. Plus when u start it fatigue is a side affect. Just makes most people sleepy

See the signature

Marcus

Cgonlag

03/17/2020 at 4:26 AM

Cgonlag

Last activity on 04/21/2020 at 7:34 AM

Joined in 2020

3 comments posted | 3 in the Multiple sclerosis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

Thank you! Had you tried any of the pill options? (If you dont mind me asking).

See the signature

Carrie

DCircular

05/09/2020 at 6:49 PM

DCircular

Last activity on 10/29/2021 at 1:23 AM

Joined in 2020

3 comments posted | 3 in the Multiple sclerosis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I'm currently taking Ocrevus, but I've had difficulty walking for a year now. What helps with that?

pksouth514

05/13/2020 at 1:48 PM

pksouth514

Last activity on 08/16/2020 at 3:41 PM

Joined in 2020

2 comments posted | 2 in the Multiple sclerosis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I am an MS fighter of 30 years now. I have been on:

Copaxone - did fine, hated the injections

Once oral meds became available, I jumped on that opportunity

Tecfidera - had a severe allergic reaction. My face swelled up - I looked like Will Smith in the movie Hitch

Aubagio - I have been on Aubagio for about 5 years now. I love it. MRI's are showing no new lesions and RRMS has been stable.

See the signature

PKSouthgate

DCircular

05/14/2020 at 5:11 PM

DCircular

Last activity on 10/29/2021 at 1:23 AM

Joined in 2020

3 comments posted | 3 in the Multiple sclerosis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I've had difficulty walking for a year now. I was diagnosed 2 years ago, and a pretty good, and established pool player. I'd just like to walk better again. Suggestions?

1988MS

05/25/2020 at 7:17 PM

1988MS

Last activity on 12/27/2023 at 6:49 AM

Joined in 2018

15 comments posted | 13 in the Multiple sclerosis Forum

Rewards

Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

@DCircular I have a friend from my MS group who takes Ampyra which I think is meant for walking. I'll have to ask her more about it. I don't have any experience with it myself but maybe you can ask your doctor about if it'd be a good option for you?

DCircular

05/25/2020 at 10:58 PM

DCircular

Last activity on 10/29/2021 at 1:23 AM

Joined in 2020

3 comments posted | 3 in the Multiple sclerosis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I've taken Ampyra for some time. It initially helped me with balance, but nothing more. Walking is still a difficulty.

Members are also commenting on...

Articles to discover...

10/04/2024 | Advice

Multiple sclerosis (MS) and sexual dysfunction: everything there is to know!

05/30/2024 | News

What are the benefits of herbal medicine for multiple sclerosis?

04/24/2024 | Testimonial

Multiple Sclerosis: “I am a warrior, and I will overcome this illness with love and positivity.”

02/02/2024 | News

Everything there is to know about Ponesimod (Ponvory®) and Fingolimod (Gilenya®)

02/01/2019 | Advice

Brain fog: Causes and how to cope

11/26/2018 | Testimonial

Multiple Sclerosis And The Success And Side-Effects With Various Treatments

08/17/2018 | Testimonial

No One Knows What Being Diagnosed with Multiple Sclerosis Is Like, So Maintain A Can-Do Attitude

05/10/2019 | Testimonial

Nicolas' story: Pursuing athletic dreams despite MS

What medication, therapy, or alt. treatment that helped the most?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

How were you diagnosed?

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...