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Dealing with remorse after having opted to have my prostate removed

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Bottomlessbob

01/27/2019 at 9:30 PM

Bottomlessbob

Last activity on 11/10/2024 at 9:37 PM

Joined in 2019

2 comments posted | 2 in the Prostate cancer Forum

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After being diagnosed with prostate cancer in 2016 I had a Gleason score of 8.8. I went to a radiologist for a consultation and was told I would be treated for 9 weeks 5 days a week. I also had a consultation with a urologist and opted to have my prostate removed. Both of my brothers had prostate cancer and had theirs removed.

After surgery I was lucky to not suffer from urinary incontinence and not suffer from ED. About a year after surgery my PSA rose and I decided to go on hormone therapy Lupron and had to have radiation therapy for 8 weeks 5 days a week. My last psa came up undetectable. I've been told the lupron can skew my psa numbers. Also I now suffer from ED because of the lack of testosterone.

Now I am suffering from buyers remorse because it seems the radiation worked and I'd have a functional prostate if I hadn't had it removed.

Also the lupron has side effects that make my confidence and really screws with my head.

This is just how I am feeling at this time.

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Unregistered member

01/31/2019 at 2:26 AM

I am new to the group. My husband did the removal and found out the cancer went into the S vessels. He has had 3 different rounds of radiation each after the PSA’s returned. He is going into his third year of hormone therapy. I understand the mess with you. He get irritated easy! He got his cancer at 47 and is 57 now.

I joined this group to help understand what’s next? Or to help others. His hormone therapy is starting to resist and his PSA is going up now.

Don’t look back on your choice because it will eat you up. Look forward and be optimistic.

Dealing with remorse after having opted to have my prostate removed https://www.carenity.us/forum/prostate-cancer/living-with-prostate-cancer/dealing-with-remorse-after-having-opted-to-have-my-prostate-removed-722 2019-01-31 02:26:05

Lee__R

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02/01/2019 at 1:13 AM

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Lee__R

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Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,338 comments posted | 23 in the Prostate cancer Forum

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@Bottomlessbob‍ I am sorry to read about your situation. I cannot imagine how frustrating and wrenching that may be.

I too have had surgeries... that failed... and were never needed because the problem was something else... It is frustrating but @Lovemyman‍ offered excellent advice... and unfortunately - it is not great news - but true news. We cannot dwell on what cannot be changed. I hope you are doing better and finding support here in the community.

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Unregistered member

03/21/2019 at 1:00 AM

I made the decision to have my proste removed and it was not an easy time... just as hard as finding out you had prostate cancer... I was advised by my doctors the surgery was the best option because of my age and the harmful affects of radiation longterm. For me, once I made the decision, I did have the peace of mind knowing that the actual cancer was "removed" instead of just treated... which, I guess, did give me some sense of comfort.

The biggest issue for me once the surgery was done and I was on the road to recovering was the effects it had on me emotionally/psychologically, which many people in my opinion overlook. I encourage anyone and everyone, when diagnosed with prostate cancer, before and after treatment and during, to seek psychological help... there is nothing wrong with it. Medications, counseling, and just talking about your feelings can help tremendously. Do not hold it all in and try to battle the anxiety and depression because this diagnosis will affect you, no matter how strong you may consider yourself to be.

The sexual effects treatment has on you will also affect you mentally, because your sexual ability and ability to have kids will likely be affected. Your performance ability can be likely fixed, but it can still affect you mentaly. Take care of yourself.

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03/21/2019 at 1:00 AM

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Dealing with remorse after having opted to have my prostate removed

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