Patients Spasticity

Spasticity: How are you feeling today?

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Courtney_J

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06/30/2020 at 12:00 AM

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Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

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Hi everyone,

How are you today? emoticon cute

@FAVORED1‍ @Jdsbruce‍ @Emndarmic‍ @Avives‍ @urll56‍ @madalena‍ @Acmartin1119‍ @Khoulihan‍ @ClareF‍ @kat1673‍ @Zozime69‍ @Keistinaruns322‍ @ragecrane‍ @brian21‍ @Stepol‍ @kathleeneden‍ @Chynarose‍ @dennisd51‍ @JBuchanan‍

I've created this discussion to allow you to share on how you are doing each day and life's little daily pleasures. It will also allow you to get to know each other and discuss on some lighter topics.

So, how are you feeling today?

Feel free to exchange and share right here! It's important that we support one another!

Take care,
Courtney

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MS_283

07/03/2020 at 4:46 PM

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MS_283

Last activity on 11/23/2022 at 9:27 AM

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57 comments posted | 4 in the Spasticity Forum

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@Courtney_J I had a rough night with spasms so I'm really tired, but other than that I'm doing my best to stay positive. When life give you lemons, make lemonade right?

Spasticity: How are you feeling today? https://www.carenity.us/forum/spasticity/living-with-spasticity/spasticity-how-are-you-feeling-today-2147 2020-07-03 16:46:14

Natsully

07/15/2020 at 2:00 AM

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Natsully

Last activity on 10/29/2022 at 5:44 PM

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9 comments posted | 2 in the Spasticity Forum

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Hi All!

Spasticity is a very difficult MS symptom that I deal with! Spasticity is my visitor every day. It comes out of nowhere and will take your breath away. My first experience with spasticity was at night. I thought that I was having leg cramps but these leg cramps were not like I had in the past. Walking did not help, ibuprofen didn’t help, heating pad was no help either. I finally resorted to taking a very warm shower. My leg cramps felt better but not me! The hot water had made me feel like a noodle. Since that time, my spasticity occurs anytime night or day. Daily, I am a lot of pain due to spasticity in my lower back, my upper back, neck, shoulders and hands! I take ultracet to help ease the pain and use Lidocaine 5% patches. Some days I look like a mummy. So far, nothing completely relieves my pain but I am very thankful that my medications at least ease my pain a little bit. My day usually depends on how I feel with all of my MS symptoms.

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Natalie Sullivan

Spasticity: How are you feeling today? https://www.carenity.us/forum/spasticity/living-with-spasticity/spasticity-how-are-you-feeling-today-2147 2020-07-15 02:00:09

Scottrj76

07/15/2020 at 4:33 PM

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Last activity on 09/16/2024 at 12:18 AM

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Does anyone have experience with the Baclofen pump? I'm currently taking 40 mg 3x a day orally but my neurologist suggested the pump, saying it may be less sedating..

Spasticity: How are you feeling today? https://www.carenity.us/forum/spasticity/living-with-spasticity/spasticity-how-are-you-feeling-today-2147 2020-07-15 16:33:25

Jerrym

08/10/2020 at 7:54 PM

Jerrym

Last activity on 04/02/2022 at 7:38 PM

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3 comments posted | 1 in the Spasticity Forum

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@Scottrj76 yes, I was on 80mg 3x/day. The side effects made me have the intrathecal pump installed. Mine is adjusted at .8 mcg/hour. It is worth it in my opinion. Good luck!

Spasticity: How are you feeling today? https://www.carenity.us/forum/spasticity/living-with-spasticity/spasticity-how-are-you-feeling-today-2147 2020-08-10 19:54:19

Natsully

08/17/2020 at 6:23 PM

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Natsully

Last activity on 10/29/2022 at 5:44 PM

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When I was given baclofen for spasticity, if I exerted myself in the smallest way, I would black out. Also, walking outside in the shade but a 90+ day, I blacked out repeatedly.
My sister sent me a Help I can’t get up system after all of my blackouts. I told her I always had my phone but how did she expect me to push the button on her system when I was out cold and never knew when the blackouts were coming. I no longer take baclofen.

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Natalie Sullivan

Spasticity: How are you feeling today? https://www.carenity.us/forum/spasticity/living-with-spasticity/spasticity-how-are-you-feeling-today-2147 2020-08-17 18:23:42

Timanddusty

09/28/2020 at 10:30 PM

Timanddusty

Last activity on 03/14/2021 at 3:04 PM

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4 comments posted | 3 in the Spasticity Forum

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Hi my MS makes me tired and fatigue i have to push my self all the time to do things then the pain sucks i have problems with my legs that sucks more sometimes i dont know what to do its so bad i just found out a year ago i had it

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Dusty

Spasticity: How are you feeling today? https://www.carenity.us/forum/spasticity/living-with-spasticity/spasticity-how-are-you-feeling-today-2147 2020-09-28 22:30:58

Timanddusty

09/29/2020 at 7:51 PM

Timanddusty

Last activity on 03/14/2021 at 3:04 PM

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Today is not a good day i am very tired and fatigue i am having problems with my legs today i am in pain i dont want to do nothin to day but i have to i cant let it get to me i got to fight it

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Dusty

Spasticity: How are you feeling today? https://www.carenity.us/forum/spasticity/living-with-spasticity/spasticity-how-are-you-feeling-today-2147 2020-09-29 19:51:29

Cynthia92

09/29/2020 at 10:06 PM

Cynthia92

Last activity on 10/14/2020 at 11:37 PM

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My legs & back are giving me problems. Some anxiety from the spasms.....gotta go for a walk. Hopefully that might help.

Take Care & Stay Safe!

Spasticity: How are you feeling today? https://www.carenity.us/forum/spasticity/living-with-spasticity/spasticity-how-are-you-feeling-today-2147 2020-09-29 22:06:13

Timanddusty

10/01/2020 at 1:49 AM

Timanddusty

Last activity on 03/14/2021 at 3:04 PM

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4 comments posted | 3 in the Spasticity Forum

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@Cynthia92‍ i am sorry to here that my back and legs get like that all the time my legs and feet have been giving me problem i dont know what to do about my feet cause i didnt think it could hurt ur feet well i hope u feel better. Take care

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Dusty

Spasticity: How are you feeling today? https://www.carenity.us/forum/spasticity/living-with-spasticity/spasticity-how-are-you-feeling-today-2147 2020-10-01 01:49:54

DrMichael

07/15/2021 at 8:04 PM

DrMichael

Last activity on 01/15/2022 at 7:48 PM

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I started taking gaba pentene , it was advised to me by my sister in law . It has decreased my twitching and restless leg symptoms . Ihad tried Baclohen multiple times , but it would leave me feeling dopey/ groggy My body tolerates this much better and it is helping decrease my symptoms with no extra side effects

Spasticity: How are you feeling today? https://www.carenity.us/forum/spasticity/living-with-spasticity/spasticity-how-are-you-feeling-today-2147 2021-07-15 20:04:07

Spasticity: How are you feeling today?

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