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What is your ankylosing spondylitis story? Let's share!

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Courtney_J

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07/20/2020 at 12:00 AM

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Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

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Hello everyone,

How are you today? emoticon cute

I thought I would open this discussion so that we can get to know one another better!

So, what is your ankylosing spondylitis story? When and how were you diagnosed? Did you receive your diagnosis right away or did it take multiple doctors to diagnose your AS? What treatments have you tried and how are you doing today? Do you have any advice to share with someone newly diagnosed with AS?
@Drfootball‍ @brownie17‍ @Kmartin143‍ @pnj0113‍ @Mary1954‍ @Shadora‍ @Dyllan‍ @Justmichelle91466‍ @Jodyolson69‍ @Jillybug‍ @toniboroni123‍ @Wiederich‍ @DiannePunky‍ @bhoney4829‍ @Kaykayloveee‍ @jford76‍ @Claracaïl‍ @joslynbauer‍

Feel free to share your story here!

Take care,
Courtney

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SouthernBelle

07/21/2020 at 6:48 PM

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SouthernBelle

Last activity on 07/21/2020 at 6:27 PM

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7 comments posted | 6 in the Ankylosing spondylitis Forum

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@Courtney_J Hi Courtney, thanks for keeping us busy on here! I was diagnosed about 10 years ago now in my 40's. I had been having a lot of pain and stiffness in my lower back over the years and eventually it got to the point where I went to the doctor for it. Low and behold, after a few scans and things they told me I had AS! I'd never even heard of it. I'm currently taking Cosentyx and it's been really great for me.

What is your ankylosing spondylitis story? Let's share! https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/what-is-your-ankylosing-spondylitis-story-lets-share-2241 2020-07-21 18:48:47

EmilyJP

07/23/2020 at 6:47 PM

EmilyJP

Last activity on 11/03/2023 at 1:19 PM

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11 comments posted | 9 in the Ankylosing spondylitis Forum

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@Courtney_J I was just diagnosed a few weeks ago. I'd been having severe back and neck pain. I assumed that it was from my years of dance as a kid and teen or from scoliosis, so I was shocked when they told me what it was. I've started taking some prescription NSAIDs and I'll be starting physical therapy and some yoga classes soon.

Somya.P

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Edited on 09/27/2023 at 5:58 PM

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Somya.P

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Last activity on 11/21/2024 at 11:49 AM

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384 comments posted | 6 in the Ankylosing spondylitis Forum

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Hello, everyone! How are you doing today? 😊

Let me go ahead and revive this discussion with input from some of our new members:

@Mariben @Juzzdabomb1 @Msmothers72 @Ivysky24 @Lovinnerdythings @Pattie67 @Valentina @RJWysocki @Anna2641!! @Aubbie @Tina63 @Tmohrdonohue @Char4237 @Gaya1299 @hgraham1987 @Auriahem @Jakette @Laurie2172 @ShirtMac @Lilly1999 @LisaBell1969 @agrayson5287 @jmjj2456 @desiree7799 @Toni660 @Bearmom @MaryleePA @catherene @Odessa @MBWhitehouse @Ranlymberis @Jackieelkins79 @Kristie68 @NancyB @Gdepozsgay @lucasj @TerriJeanne @MsDiagnosed @Lonnie1 @Lmg21532 @Babegurl17 @Katkat @antonia3 @Nettyfitz @mariannamay @AdelevS @Iainrocks @Perm111 @MandyD @Snolen @MultiXx @Leonardotrue @FelinaStolk @meremesnell @Marns1978 @empengui @TerryReed @bitmap @Leahr215

Take care and have a wonderful day! 🌼

Somya from the Carenity team

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Somya from the Carenity team

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ordinaryheath

Edited on 03/25/2024 at 2:09 PM

ordinaryheath

Last activity on 03/25/2024 at 9:49 AM

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1 comment posted | 1 in the Ankylosing spondylitis Forum

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@Somya.P [This content has been moderated by an administrator]

I'm new here.

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edprofess

Edited on 06/05/2024 at 5:25 AM

edprofess

Last activity on 06/06/2024 at 4:49 AM

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1 comment posted | 1 in the Ankylosing spondylitis Forum

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I'm a newbie

@Fabbonusmom @rfhernandez01 @asaan32 @rgalarza2 @AS1218

anyaburke

Edited on 06/11/2024 at 9:46 AM

anyaburke

Last activity on 07/12/2024 at 6:03 AM

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Many people with AS see multiple doctors before receiving the correct diagnosis. It's common for it to take several years from the onset of symptoms to get a definitive AS diagnosis @age of war

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agementjellied

Edited on 09/18/2024 at 11:13 AM

agementjellied

Last activity on 09/17/2024 at 10:12 AM

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Patient, Ankylosing spondylitis since 2024

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[This content has been moderated by an administrator for violating Carenity’s Terms of Use.] Then, all of a sudden, after a few scans and other procedures, they informed me that I had AS! I had never even heard of it before. I am currently on Cosentyx, and it has been incredibly helpful for me.

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

I am in the severe range now at 74 yrs old. I have found thru trial and error and getting older with SA, I sleep on my back because I can hardly turn to my side now. I also take 10 mg Melatonin. I didn't know it came in 20 mg! (Thanks ladyslipper 67) What has really help with my back pain, when in bed, is a large memory foam wedge. The large end is under my knees and my legs go down to the small end. It doesn't move when I sleep but then again I am not turning over back and forth. This takes the pressure off my back. I hope this helps someone.

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

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