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Humira (adalimumab) for AS: Experiences, side effects, advice

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Humira (adalimumab) for AS: Experiences, side effects, advice

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yelenaor

01/23/2019 at 12:33 AM

yelenaor

Last activity on 04/07/2020 at 5:19 AM

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I am pretty scared due to the array of side effects. What are your thoughts?

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AS1218

01/23/2019 at 4:42 AM

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@yelenaor‍ hello, How are you?

What medications have you been on before for your AS? Did you try other blockers or just NSAIDS for the pain and stiffness?

Humira seems to do a very good job a STOPPOING the SOURCE of inflammation, so you should notice an increase in mobility and decrease in pain. With biologics you must take your immune system into account, because it will decrease your immune system... I say stock up on Vit C (bulk supplements has good prices). Also, some people get headaches for Humira.

I know a long time ago (10 years plus) people were taking Humira (or other biologic + methotrexate), but I think the methotrexate combo went out of stye bc they found methotrexate research does not show any true benefit for AS.

Humira (adalimumab) for AS: Experiences, side effects, advice https://www.carenity.us/forum/ankylosing-spondylitis/your-opinion-on-ankylosing-spondylitis-treatme/i-am-about-to-start-humira-704 2019-01-23 04:42:21

yelenaor

01/23/2019 at 4:50 AM

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Hi! This is my first AS medicine. I have been managing pain with pain killers until recently when it got significantly worse. I am going to up my vitamin C doze. Thank you

Lee__R

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01/24/2019 at 5:26 AM

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Lee__R

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@yelenaor hello,

Did you already start humira? If so, how are you doing thus far?

My mother also takes biologics, but for RA, and it does seem to lower the immune system. She takes vitamins, including extra Vitamin C, and trys to get enough rest... when she does fall asleep, she is knocked out...it takes a train to wake her up (lol... she can sleep through anything now) not sure if that is a side-effect of the biologic, however.

But she also feels a lot better now on it.

yelenaor

01/24/2019 at 5:12 PM

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Last activity on 04/07/2020 at 5:19 AM

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Hi. I haven't started yet. It's sitting in the fridge until I make a decision . A lot of rest probably isn't in my future with a full time job and grad school.

Thank you for your input!

Joanna07

01/25/2019 at 6:20 AM

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I began Humira, I thought I had a pretty high pain tolerance and fatty stomach tissue but this took the cake. I lost about 15 pounds on Humira and experienced several side effects, but every biological takes effect differently with every person. Take lots of vitamins and lots of sleep!!!

AS1218

02/01/2019 at 12:55 AM

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@yelenaor @Joanna07‍ are you saying you experienced increase pain with Humira? I never experienced that... I don't think, I was always in pain.

But yes, vitamins and sleep! Emphasizing Vitamin C.

yelenaor

02/01/2019 at 7:35 PM

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I took my first shot yesterday! I was so nervous, I almost passed out, but there was zero pain. Yeah! I didn't feel well all day though. Definitely feeling better today

Lee__R

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02/06/2019 at 4:12 AM

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I am glad to hear you are feeling better @yelenaor‍ and did not have pain. Have you been dosing Vitamin C and getting rest?

Lee__R

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04/24/2019 at 3:38 AM

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Lee__R

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Hi @yelenaor‍ ... any updates? Has the Vitamin C been helping?

mark48

02/26/2020 at 11:24 AM

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Last activity on 05/13/2022 at 5:01 PM

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@yelenaor Hi, any updates on your condition? I'm curious!

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

I am in the severe range now at 74 yrs old. I have found thru trial and error and getting older with SA, I sleep on my back because I can hardly turn to my side now. I also take 10 mg Melatonin. I didn't know it came in 20 mg! (Thanks ladyslipper 67) What has really help with my back pain, when in bed, is a large memory foam wedge. The large end is under my knees and my legs go down to the small end. It doesn't move when I sleep but then again I am not turning over back and forth. This takes the pressure off my back. I hope this helps someone.

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

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