Home
Share
Forum
Ankylosing spondylitis Forum
Treatments for ankylosing spondylitis
Humira (adalimumab) for AS: Experiences, side effects, advice

Back

Patients Ankylosing spondylitis

Humira (adalimumab) for AS: Experiences, side effects, advice

183 views
5 times supported
17 comments

yelenaor

01/23/2019 at 12:33 AM

yelenaor

Last activity on 04/07/2020 at 5:19 AM

Joined in 2019

5 comments posted | 5 in the Ankylosing spondylitis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I am pretty scared due to the array of side effects. What are your thoughts?

All comments

Go to the last comment

yelenaor

02/27/2020 at 3:03 AM

yelenaor

Last activity on 04/07/2020 at 5:19 AM

Joined in 2019

5 comments posted | 5 in the Ankylosing spondylitis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

It did magic! I have been pain free for a year

Humira (adalimumab) for AS: Experiences, side effects, advice https://www.carenity.us/forum/ankylosing-spondylitis/your-opinion-on-ankylosing-spondylitis-treatme/i-am-about-to-start-humira-704 2020-02-27 03:03:36

Lee__R

Community manager

02/28/2020 at 3:54 PM

Good advisor

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,338 comments posted | 26 in the Ankylosing spondylitis Forum

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend
Top chef

View profileView Add a friendAdd Write

@yelenaor Hello yelenaor, this is great news! Congratulations! emoticon dance

JTom4cats

04/06/2020 at 9:57 PM

Good advisor

JTom4cats

Last activity on 07/02/2024 at 5:06 PM

Joined in 2019

16 comments posted | 15 in the Ankylosing spondylitis Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Explorer
Evaluator

View profileView Add a friendAdd Write

@yelenaor - also stock up on zinc,

See the signature

Tom W - Food and Coffee

mark48

04/29/2020 at 4:41 PM

mark48

Last activity on 05/13/2022 at 5:01 PM

Joined in 2018

17 comments posted | 14 in the Ankylosing spondylitis Forum

Rewards

Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

Hi @yelenaor‍

One year without pain, this is so great! Congrats! And you don't any side effects? I'm still on Enbrel injections but my doctor wanted to maybe try Humira before all the Covid thing. We will see... How do you do btw? Are you self-isolated? I'm staying at home with my wife but I miss going out and seeing our friends. Its so frustrating to feeling good right now and not being able to do anything!

CDKennedy

05/30/2022 at 9:10 PM

Good advisor

CDKennedy

Last activity on 07/10/2024 at 11:16 PM

Joined in 2018

26 comments posted | 12 in the Ankylosing spondylitis Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Explorer

View profileView Add a friendAdd Write

I was on it for a year and it didnothing for me. Between that and possible side effects, if quit taking it.

HOWEVER I didn't start till age 70 and too much damage had been done. Went to 2 different rheumatologits and neither of them helped me.

So I am happy some people founf relief from it.I don't want to discourage anyone for trying it.

LizziB

Community manager

Edited on 04/15/2023 at 12:23 PM

Good advisor

LizziB

Community manager

Last activity on 04/21/2024 at 8:17 PM

Joined in 2022

603 comments posted | 16 in the Ankylosing spondylitis Forum

24 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend

View profileView Add a friendAdd Write

Hi @yelenaor @AS1218 @Joanna07 @mark48 @CDKennedy @JTom4cats

How are you guys doing today?

I want to encourage everyone to post their treatment reviews here https://member.carenity.us/medications

This new feature is where Carenity members can leave their opinions about side effects and medicine efficacy.

Take care,

Lizzi from the Carenity team

See the signature

LizziB

Owenpaul

Edited on 10/08/2024 at 6:19 PM

Owenpaul

Last activity on 10/07/2024 at 11:02 AM

Joined in 2024

Patient, Ankylosing spondylitis since 2024

1 comment posted | 1 in the Ankylosing spondylitis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

It's completely normal to feel scared or anxious about potential side effects, especially when it comes to medications or treatments. It's important to discuss your concerns with a healthcare professional who can provide personalized information and support. They can help you weigh the benefits and risks, and may offer alternatives or strategies to manage side effects.

[This content has been moderated by an administrator for violating Carenity’s Terms of Use.]

Members are also commenting on...

CDKennedy

Edited on 05/22/2022 at 10:09 PM

I am in the severe range now at 74 yrs old. I have found thru trial and error and getting older with SA, I sleep on my back because I can hardly turn to my side now. I also take 10 mg Melatonin. I didn't know it came in 20 mg! (Thanks ladyslipper 67) What has really help with my back pain, when in bed, is a large memory foam wedge. The large end is under my knees and my legs go down to the small end. It doesn't move when I sleep but then again I am not turning over back and forth. This takes the pressure off my back. I hope this helps someone.

See the best comment

CDKennedy

Edited on 05/22/2022 at 10:09 PM

See the best comment

Articles to discover...

03/18/2024 | News

How does ankylosing spondylitis affect the bones?

03/11/2024 | Nutrition

The effects of diet on ankylosing spondylitis

01/12/2024 | Advice

Who should be on your ankylosing spondylitis (AS) healthcare team?

08/25/2023 | News

The benefits of physical activity in the management of ankylosing spondylitis

10/16/2018 | Testimonial

Ankylosing Spondylitis: More Than Fifteen Years of Pain to Finally Live a Better Life

06/15/2020 | Testimonial

Testimonial: "More than two months later, I'm still not completely recovered!"

07/16/2021 | Advice

Ankylosing spondylitis: Everything you need to know!

02/10/2022 | Advice

Ankylosing spondylitis: What are flare-ups and how to manage them?

Humira (adalimumab) for AS: Experiences, side effects, advice

All comments

Give your opinion

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...