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Patients Ankylosing spondylitis

You know you have AS when...

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nomasAS

08/02/2018 at 6:50 AM

nomasAS

Last activity on 09/26/2023 at 11:23 PM

Joined in 2018

23 comments posted | 15 in the Ankylosing spondylitis Forum

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I saw this on a different site and thought it is a great idea... a way for us to make humor and laugh at our condition, despite it. Kind of as a way for us to find humor through it all.

I will start and hope this carries on...

You know you have ankylosing spondylitis when ...

... you wake up in the morning more tired than the night before despite sleeping.

... you want you install a ramp to get you out of bed.

Keep it going.

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Unregistered member

11/05/2018 at 9:04 AM

Hello nomad,

I sincerely hope that you feel much better by now. Sharing with others with similar problems can be very helpful, I hope. I have detached from my longterm friends because I felt I had become my disease(s), and was not able to have conversations without talking about my chronic pain, depression and ongoing struggle with overeating, I just lost my sense of humor when my surgery for spinal stenosis was cancelled 4 days prior because my A1C ist at 10. I have had to wait 3 months to recover from knee surgery before I was given a date for my spine and wish I had been told about this criteria at that time so I could have gotten extra support to lower my sugar levels. Has anyone had a similar experience? Spinal stenosis is very painful, as most spinal conditions are,

You know you have AS when... https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2018-11-05 09:04:38

rwilsonjr67

11/09/2018 at 9:18 PM

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rwilsonjr67

Last activity on 07/22/2024 at 4:23 PM

Joined in 2018

7 comments posted | 7 in the Ankylosing spondylitis Forum

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You know you have AS when.....

You bend over to tie your shoe and not only can you not reach your foot, but you can’t get back up either.

You know you have AS when... https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2018-11-09 21:18:59

DuchyCT

11/10/2018 at 4:34 AM

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DuchyCT

Last activity on 09/15/2020 at 12:21 AM

Joined in 2018

5 comments posted | 5 in the Ankylosing spondylitis Forum

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Your chest is so tight you think you are having heart attacks, but nope, it’s just your ribs fusing, and that’s supposed to ease your mind in some way.

You know you have AS when... https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2018-11-10 04:34:03

Lee__R

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01/18/2019 at 1:59 AM

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Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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1,338 comments posted | 26 in the Ankylosing spondylitis Forum

2 of their responses were helpful to members

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Hello members... @nomasAS‍ created a fun way to have humor with your condition. Feel free to participate and give an example of "You know you have AS when..."

@Monroe‍ @Cmghap‍ @Abanko‍ @Samreen‍ @JanBran‍ @Maryproia520‍ @Ktaylor3638‍ @sking6767‍ @PomMom‍ @JTom4cats‍ @katw78‍ @Csteep‍ @Altafahmad‍ @SusieC‍ @AngelSheri‍ @Salazar‍ @Gaby0412‍ @Sheilak30‍ @Vinnyo‍ @Stephanie5521‍

You know you have AS when... https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2019-01-18 01:59:40

AS1218

01/18/2019 at 2:09 AM

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AS1218

Last activity on 02/05/2024 at 1:39 AM

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56 comments posted | 31 in the Ankylosing spondylitis Forum

3 of their responses were helpful to members

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@Edelweiss70 how is your spine? Did you have surgery on it? I do not have spinal stenosis yet to that severity... but aware of it and know others that suffer from it!

In regard to the post... well... you know you have AS when laying down flat on your back, which is supposed to be healthy for most, causes you discomfort and pain!

You know you have AS when... https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2019-01-18 02:09:40

AS1218

01/18/2019 at 2:10 AM

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AS1218

Last activity on 02/05/2024 at 1:39 AM

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56 comments posted | 31 in the Ankylosing spondylitis Forum

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@rwilsonjr67 I agree... reach over and then... wam... stuck!

You know you have AS when... https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2019-01-18 02:10:11

katw78

01/18/2019 at 5:00 AM

katw78

Last activity on 08/18/2024 at 1:58 AM

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2 comments posted | 2 in the Ankylosing spondylitis Forum

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You know you have ankylosing spondylitis when ...

You can't decide if you should try to get out of the bath or just sit there wishing you had taken a shower instead.

Getting ready to go somewhere takes a lot longer than it used to.

You feel like a human pin cushion.

You tell people you have AS and they say "yeah, but there is nothing 2 Advil can't fix."

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Kat

You know you have AS when... https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2019-01-18 05:00:05

Kls003456

01/26/2019 at 4:18 AM

Kls003456

Last activity on 09/22/2019 at 1:27 AM

Joined in 2019

1 comment posted | 1 in the Ankylosing spondylitis Forum

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I’m new here . I am often so sore all over from my neck down . I try to ignore it . My sides are sore, Bizarre . Trying to find out more info , Drs. Really don’t say too much about it , Just on NSAIDs. Hand cramps , leg cramps , . I just take 3 T pickle juice to get rid of them . A day at a time.

You know you have AS when... https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2019-01-26 04:18:47

Cdionne1089

01/07/2022 at 6:03 PM

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Cdionne1089

Last activity on 01/14/2022 at 2:54 PM

Joined in 2021

18 comments posted | 6 in the Ankylosing spondylitis Forum

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You know you have AS when…

crossing your legs makes your knees hurt…

your back is hunched over…

your body doesn’t agree with your mind…

you’re 32 and already lost over an inch in height…

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Crystal Rose

You know you have AS when... https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2022-01-07 18:03:42

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

I am in the severe range now at 74 yrs old. I have found thru trial and error and getting older with SA, I sleep on my back because I can hardly turn to my side now. I also take 10 mg Melatonin. I didn't know it came in 20 mg! (Thanks ladyslipper 67) What has really help with my back pain, when in bed, is a large memory foam wedge. The large end is under my knees and my legs go down to the small end. It doesn't move when I sleep but then again I am not turning over back and forth. This takes the pressure off my back. I hope this helps someone.

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

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