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Lynch syndrome (HNPCC) and developing cancer

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Dandylu

10/21/2021 at 8:55 PM

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Dandylu

Last activity on 10/08/2024 at 12:00 AM

Joined in 2021

13 comments posted | 7 in the Cancer Forum

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Wondering if anyone has genetic cancer in their family? How do you cope with it?

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Courtney_J

Community manager

10/25/2021 at 6:22 PM

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Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

Joined in 2020

1,340 comments posted | 53 in the Cancer Forum

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Hello @Dandylu‍ thank you for opening this discussion. Let me tag some other members who can possible share with you!

For those of you who may not be familiar, Lynch syndrome, also known as hereditary non-polyposis colorectal cancer (HNPCC), is the most common cause of hereditary colorectal cancer. It also raises a person's likelihood of developing endometrial, stomach, liver, kidney, brain, and certain types of skin cancers.

Do any of you have hereditary cancer like Lynch syndrome? How did you find out? How do you cope with it?
@Willigan‍ @bcarr0033‍ @gamboam92‍ @Helen54‍ @Kheffers79‍ @cheryoak‍ @Lilbit3013‍ @MsJerry2569‍ @Roseash‍ @Dwayne‍ @Briguy2020‍ @Alferrier01‍ @14tideman‍ @TerriEngels‍ @Pahodge05‍ @Cooqie33‍ @Jamiemomma‍ @Chanika‍

Feel free to share with us here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity US

Lynch syndrome (HNPCC) and developing cancer https://www.carenity.us/forum/cancer/living-with-cancer/lynch-syndrome-3869 2021-10-25 18:22:28

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DCline3dogs

02/18/2024 at 9:05 PM

I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.

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DCline3dogs

02/18/2024 at 9:05 PM

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Lynch syndrome (HNPCC) and developing cancer

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