FOLFOX chemotherapy for colorectal cancer

Hi @Egoloco, thank you for opening this discussion. Let me tag some other members who can possibly share with you.

Hi everyone, have you undergone chemotherapy for your colorectal cancer? If so, was it the FOLFOX regimen (folinic acid, fluorouracil, oxaliplatin)? Can you share your experience with it - side effects, effectiveness, etc.?

@chrissy62 @kdb397 @SullyMVP25 @Gordana @Hope13 @Jmcclintock917 @sribina1 @Jcoop1001 @Messenger77 @Jbriede @Mnorman @MrsMDuke @Omards @ALONDRA&06 @denisep @sprosse @widow1225 @Willigan @bcarr0033

Take care,

Courtney

I have gone through this treatment twice so far. Both times it affected my mouth and fingers. I couldn’t drink anything cold or it would feel like razor blades going down my throat. That eased off after treatment. It also gave me mouth sores mainly swollen gums . I also could not touch anything cold especially something frozen. Felt like instant frostbite. Painful. Never had a problem with nausea much luckily. I paired that treatment with Avastin as well which gave me high blood pressure. It was perfect before taking it. It was uncomfortable at times but manageable. So far I have had Folfox twice and Folfiri twice for a total of 24 rounds in addition to being on Xeloda for a full year as well. It has come back three times but the treatments do work well. Just something I have to keep doing.

@Jmcclintock917

Hi, thanks for your comments, it's scary but if it's effective it's already something positive and yes, we have to keep doing