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I have dystonia and I struggle with the way people look at me
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Dyston!a
Dyston!a
Last activity on 08/13/2020 at 3:28 PM
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33 comments posted | 29 in the Dystonia Forum
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@Jdsbruce I understand that feeling. It is hard because like you said - people mean well, but when I wake up - I am still waking with the same condition, same symptoms, same pain.
How is having Cervical dystonia and MS? Does MS complicate things?
Dyston!a
Dyston!a
Last activity on 08/13/2020 at 3:28 PM
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33 comments posted | 29 in the Dystonia Forum
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@Foxyfoxm Thank you for sharing. I think I wrote you in the other forum about your acupuncture. That is great the CBD helps with your anxiety. I know people say that I am feeling the stares, but most people are not really staring, but I don't know - I argue differently - I have actually seen people just stand there and stare and it drives me crazy, but I should not let it get to me.
mvmentme
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mvmentme
Last activity on 10/13/2019 at 5:55 AM
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27 comments posted | 15 in the Dystonia Forum
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Staring is inevitable and we can't change the stares we received. Try not to focus on it.
Raine061
Raine061
Last activity on 12/21/2019 at 5:02 PM
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10 comments posted | 7 in the Dystonia Forum
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Yep, get stares. The worst are on job interviews even when I explain I have neck spasms. It's so freaking frustrating. 😔
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Raine
Jdsbruce
Jdsbruce
Last activity on 11/12/2024 at 4:36 AM
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@Dyston!a yes, MS complicates life in general. I'm on max oral dose of Baclofen, take 800mg Neurontin 4 x a day, take 100mg Provigil 2x a day to make it through work. I've got nothing left by time I get home...I'm just exhausted.
Courtney_J
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Courtney_J
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Last activity on 08/08/2022 at 11:09 AM
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1,340 comments posted | 5 in the Dystonia Forum
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Hello everyone,
How are you doing? Have you seen this discussion?
Have you noticed how others react to your dystonia? Does it bother you? How do you handle it? Do you think there is enough education out there on dystonia and its symptoms?
@mvmentme @SFoster @tammysue2015 @BeckyS @mamawho @Tamiam @maritootles @Janine @Tussie56 @JudyMcVay @izisjewels @donhop @Powens @Sunbeam @madalena @Jaytwothree @betsyns @Buggsme
Feel free to share your thoughts and experiences here!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity US
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Dyston!a
Dyston!a
Last activity on 08/13/2020 at 3:28 PM
Joined in 2019
33 comments posted | 29 in the Dystonia Forum
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Hi everyone,
I hope this post is in the right place.
I have cervical dystonia and the longer it goes on, the more it impacts my daily life. I feel like people are staring at me. The people I meet tend to not look at me very much during conversations...
Is it in my head or do you have that feeling too?
Thank you very much,