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How can I support my partner who has Multiple Myeloma?

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How can I support my partner who has Multiple Myeloma?

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Jessie1564

10/18/2023 at 4:28 PM

Jessie1564

Last activity on 12/18/2023 at 6:59 AM

Joined in 2023

6 comments posted | 5 in the Multiple myeloma Forum

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Hi there

My partner has multiple myeloma. I still don't quite understand how I can best support him. I hate to always ask him "how can I help" because it feels like I am being more annoying than supportive. I can see when he is in pain, but I'm not sure what to do. I have been reading things online but its not the same as hearing from someone actually living with it.

Thanks in advance!

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LizziB

Community manager

10/20/2023 at 1:44 AM

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LizziB

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Last activity on 04/21/2024 at 8:17 PM

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603 comments posted | 14 in the Multiple myeloma Forum

24 of their responses were helpful to members

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Hi @Jessie1564

How are you doing today?

This is a great discussion question to ask the Carenity community, thank you for getting it started. I will tag a few member who may be able to provide their opinions on this.

@Csuefra @grandpapaul @sleaw1961 @Deannaw @Kelly1982 @desireedkn @Mam982000 @joeblack445 @JanelleS @sshina @Nannydeb @Wgreen1990 @Desg1928 @MaryLillian @cornerpocket1987yahoo.com @sharoncadwell34 @realtor @Ldscimeme @dadachip @Anneelise @Ozarkpd120 @Donnierae @Olveraangel @MPL54! @Vc4him2000 @Christoina007 @cnapolillo @Svisser2157 @Pscott2953$ @Tammy63 @Lindac66 @Carol66 @Bengiefay @Karens730 @Ediehg @MerriD @Boulet @Kathisu @wolfsouls @Awalker

How can your partner support you through MM? What do you wish they would ask you? What would you tell them is the most helpful thing action they can do?

Please share and give @Jessie1564 some perspective for her situation.

Take care,

Lizzi from the Carenity team

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LizziB

How can I support my partner who has Multiple Myeloma? https://www.carenity.us/forum/multiple-myeloma/living-with-multiple-myeloma/how-can-i-support-my-partner-who-has-multiple-5538 2023-10-20 01:44:20

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LostSock

10/23/2023 at 11:16 AM

LostSock

Last activity on 10/07/2024 at 6:10 PM

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4 comments posted | 4 in the Multiple myeloma Forum

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@LizziB

For me personally, the mental load is heavy. I have a therapist, but sometimes I want to share with my partner as well but I hesitate because I know cancer talk is never fun for the other person. What we do, is when I (or my partner) know that we want want to talk about something MM related, we schedule a time to sit down and talk. This allows for each of us to get mentally ready to focus on some hard discussions. I found that this works best, rather than just talking about it all the time randomly. We are both able to show up, mentally prepared, sometimes with a list. This has allowed us to really get through discussions together and be supportive instead of blindsided.

Good luck, its a difficult journey, but I know you will manage!

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DCline3dogs

02/18/2024 at 9:05 PM

I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.

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DCline3dogs

02/18/2024 at 9:05 PM

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