Home
Share
Forum
Multiple myeloma Forum
Living with multiple myeloma
How can I support my partner who has Multiple Myeloma?

Back

Patients Multiple myeloma

How can I support my partner who has Multiple Myeloma?

15 views
0 support
2 comments

Jessie1564

10/18/2023 at 4:28 PM

Jessie1564

Last activity on 12/18/2023 at 6:59 AM

Joined in 2023

6 comments posted | 5 in the Multiple myeloma Forum

Rewards

Messenger
Explorer

View profileView Add a friendAdd Write

Hi there

My partner has multiple myeloma. I still don't quite understand how I can best support him. I hate to always ask him "how can I help" because it feels like I am being more annoying than supportive. I can see when he is in pain, but I'm not sure what to do. I have been reading things online but its not the same as hearing from someone actually living with it.

Thanks in advance!

All comments

LizziB

Community manager

10/20/2023 at 1:44 AM

Good advisor

LizziB

Community manager

Last activity on 04/21/2024 at 8:17 PM

Joined in 2022

603 comments posted | 14 in the Multiple myeloma Forum

24 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend

View profileView Add a friendAdd Write

Hi @Jessie1564

How are you doing today?

This is a great discussion question to ask the Carenity community, thank you for getting it started. I will tag a few member who may be able to provide their opinions on this.

@Csuefra @grandpapaul @sleaw1961 @Deannaw @Kelly1982 @desireedkn @Mam982000 @joeblack445 @JanelleS @sshina @Nannydeb @Wgreen1990 @Desg1928 @MaryLillian @cornerpocket1987yahoo.com @sharoncadwell34 @realtor @Ldscimeme @dadachip @Anneelise @Ozarkpd120 @Donnierae @Olveraangel @MPL54! @Vc4him2000 @Christoina007 @cnapolillo @Svisser2157 @Pscott2953$ @Tammy63 @Lindac66 @Carol66 @Bengiefay @Karens730 @Ediehg @MerriD @Boulet @Kathisu @wolfsouls @Awalker

How can your partner support you through MM? What do you wish they would ask you? What would you tell them is the most helpful thing action they can do?

Please share and give @Jessie1564 some perspective for her situation.

Take care,

Lizzi from the Carenity team

See the signature

LizziB

How can I support my partner who has Multiple Myeloma? https://www.carenity.us/forum/multiple-myeloma/living-with-multiple-myeloma/how-can-i-support-my-partner-who-has-multiple-5538 2023-10-20 01:44:20

Close all

See the responses

LostSock

10/23/2023 at 11:16 AM

LostSock

Last activity on 12/09/2024 at 6:09 PM

Joined in 2023

4 comments posted | 4 in the Multiple myeloma Forum

Rewards

Messenger
Explorer

View profileView Add a friendAdd Write

@LizziB

For me personally, the mental load is heavy. I have a therapist, but sometimes I want to share with my partner as well but I hesitate because I know cancer talk is never fun for the other person. What we do, is when I (or my partner) know that we want want to talk about something MM related, we schedule a time to sit down and talk. This allows for each of us to get mentally ready to focus on some hard discussions. I found that this works best, rather than just talking about it all the time randomly. We are both able to show up, mentally prepared, sometimes with a list. This has allowed us to really get through discussions together and be supportive instead of blindsided.

Good luck, its a difficult journey, but I know you will manage!

Hide the responses

Members are also commenting on...

DCline3dogs

02/18/2024 at 9:05 PM

I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.

See the best comment

DCline3dogs

02/18/2024 at 9:05 PM

See the best comment

Articles to discover...

04/17/2024 | Testimonial

Multiple Myeloma: “I roll with the punches, stay active when I can, and rest when I need to.”

07/13/2022 | Testimonial

Multiple myeloma: “There isn’t a one size fits all approach to this disease.”

12/13/2021 | News

Multiple myeloma: What follow-up care options are available?

10/07/2021 | News

Multiple myeloma: Everything you need to know!

01/15/2019 | News

Telling patients to 'fight' cancer puts them under pressure

02/04/2019 | News

World Cancer Day: Facts and Insights!

07/12/2019 | Nutrition

Cancer and food: advice from a dietitian (1/2)

05/15/2019 | Testimonial

Multiple myeloma: "We must accept our new normal and make the best of the time we still have"

How can I support my partner who has Multiple Myeloma?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

How were you diagnosed?

Members are also commenting on...

Articles to discover...