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MGUS: Will it progress into multiple myeloma?
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Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 11 in the Multiple myeloma Forum
6 of their responses were helpful to members
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Hello @Carlton.L, thank you for opening this discussion. I know getting a new diagnosis can be really stressful to handle. Let me tag some other members who can possibly share with you.
For those of you who may not be aware, MGUS (monoclonal gammopathy of unknown significance) is a non-cancerous condition where the body makes an abnormal protein called a paraprotein.
People with MGUS have a higher likelihood of developing both multiple myeloma and , with about 1% of cases of MGUS progressing into MM each year.
What about you? Were any of you diagnosed with MGUS before multiple myeloma? How were you diagnosed? Did you have any symptoms? Were there any treatments for it? How long until it progressed to active multiple myeloma?
@Fredrickabshier@JoannB@CEstevez77@tammyru2005@kugie5@JerryL65@Joshleen@kellykat38@Icemanwess@tpk777111@Haledrive@nikat315@sharkna@wildfry@Peacock@reginacromer47@DickHall@Carolynfranz
Take care,
Courtney
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Courtney_J, Community Manager, Carenity US
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
See the best comment
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Carlton.L
Carlton.L
Last activity on 01/26/2022 at 11:08 AM
Joined in 2021
3 comments posted | 3 in the Multiple myeloma Forum
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Is having MGUS a bad sign if you have already been treated for multiple myeloma? Can you live normally with it? Is it treatable? How is it treated?
Thanks