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Patients Multiple myeloma
New study available!
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LizziB
Community managerGood advisor
LizziB
Community manager
Last activity on 04/21/2024 at 8:17 PM
Joined in 2022
603 comments posted | 14 in the Multiple myeloma Forum
24 of their responses were helpful to members
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LizziB
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
See the best comment
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LizziB
Community managerGood advisor
LizziB
Community manager
Last activity on 04/21/2024 at 8:17 PM
Joined in 2022
603 comments posted | 14 in the Multiple myeloma Forum
24 of their responses were helpful to members
Rewards
Good Advisor
Contributor
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The study is a simple questionnaire (you can stop the survey at any moment and come back where you stopped) estimated to take around 20 minutes to complete.
Participate in the survey by clicking here: https://member.carenity.us/give-my-opinion/surveys/patient-preferences-for-multiple-myeloma-treatments/583
Help contribute to the improvement of medical knowledge related to the management of multiple myeloma. Once available, we will share a synthesis of the results with all the participants.
Who can participate? Adult patients living in the US who have received at least one prior line of treatment for Multiple Myeloma.
Take care,
Lizzi from the Carenity team