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Patients Multiple myeloma
What are some online sources you use to learn about Multiple Myeloma?
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LizziB
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LizziB
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Last activity on 04/21/2024 at 8:17 PM
Joined in 2022
603 comments posted | 14 in the Multiple myeloma Forum
24 of their responses were helpful to members
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Hi @Jessie1564
How are you?
Thank you for sharing these resources!
Do you have any MM resources that helped you understand the disease that you'd like to share?
@Findoka @ualman @LadyCoconut @Cerdaj @kimcallaway12 @PSesker @Phil.yandel @lauralippmann @JWPOPE50 @1sunmk @glennadunn1226 @Harstev @MaHeck @shellmark @Counselor71 @Lods10.10.2023 @Chloegirl @Patsull50 @Samsthetwin @Sleelee68 @EMHart @Paso906 @totopeg @RJOHNIGARN1 @Mikepeele @LadyDJP @Ahallphd2017 @Csuefra @Theobaldsherry @mrscarone @thegurns
Take care,
Lizzi from the Carenity team
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LizziB
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ualman
ualman
Last activity on 11/01/2024 at 1:59 AM
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1 comment posted | 1 in the Multiple myeloma Forum
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@LizziB Hi. My main connection is "My Myeloma Team".
thegurns
thegurns
Last activity on 08/20/2024 at 2:35 PM
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@LizziB Yes,
Amazon.com: Living Well with Cancer eBook : GUERNSEY, KEITH: Kindle Store
Please contact me anytime that I can help you.
I am a Myeloma Coach.
Stay Strong, Keith
3X cancer survivor
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Keith Douglas Guernsey
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
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Jessie1564
Jessie1564
Last activity on 12/18/2023 at 6:59 AM
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6 comments posted | 5 in the Multiple myeloma Forum
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Hi
When my husband was diagnosed I was told not to google blindly about MM. It will scare you and is not always correct. I wanted to share a few sites that I found in my research that I found presented information in a decent way-
International Myeloma Foundation handbook -https://s3.us-west-1.wasabisys.com/imf-d8-prod/resource/patient-handbook.pdf
Presentation on the most current treatments and side effects (Revlimid, Velcade, Dexamethasone, and Darzalex) https://www.youtube.com/watch?app=desktop&v=w8qPJtRWETs
Detailed patient & caregiver guide on autologous stem cell transplants (this hospital seems credible) https://www.mskcc.org/cancer-care/patient-education/autologous-stem-cell-transplant-guide-patients-caregivers
What other sites do you use/trust to learn?