MS and the Coronavirus - How are you handling the pandemic?

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Courtney_J

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03/13/2020 at 2:49 PM

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Courtney_J

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Hello everyone,

Since the Coronavirus epidemic concerns many Americans (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of multiple sclerosis, as we all know that patients can be weakened by their treatments.

Have you received any special instructions from your doctor regarding your care? Are you going to limit your travel? Do you have any advice for others?

Take care,

Courtney

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Jrbarber

04/01/2020 at 1:48 AM

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Why is it so hard to answer the question? All I want to know is the effect on ppl with MS and the corona virus.... you know, like the link said to click on to get answers 🤬

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-04-01 01:48:33

TheMSDad

04/02/2020 at 7:20 PM

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@dawn.flach‍ if you haven't taken any medication for your MS, then you aren't immunosuppressed. You only have to worry about immunosuppession if you are currently medicated.

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TheMSDad

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-04-02 19:20:43

Elk217015

04/02/2020 at 10:27 PM

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I have been laid off for a little over a week I've stayed home as the order to do so, only going out as needed but Even though I have MS, I still wonder deep inside if know matter what we have is there any real (either way) difference if we are anymore suspectable to the virus?? Don't know if anyone can answer that!? I don't have any other health condition, so just taking care of myself & pray for all of us in this situation & that this will be over soon

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-04-02 22:27:24

TheMSDad

04/03/2020 at 5:45 PM

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@Elk217015‍ I consulted my neurologist regarding this. If you are on, or have taken any taken any type of immunosuppressant drug course, you are considered high risk to contract coronavirus through community spread, especially since carriers can be asymotomatic for weeks and still spread the virus. I still go out to do obtain necessary supplies, but EVERYTHING is disinfected before it comes in our home with wipes and/or spray. Just be smart if you decide to go out.

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TheMSDad

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-04-03 17:45:56

MonicaBinkley

04/04/2020 at 6:55 AM

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Hi, Im new to Carenity but was intriqued by this topic. Intriqued bc I am to be tested in the am. Home health nurses believe I have it and have asking all day for me to go to er. I havent bc my elderly mother lives with me but will not just drop me off.We are quaranteened away from each other but I dont think its enough.I have an appt at a drive through site in the am but they still take 48 hours to tell you. My fever is up to 101 but i feel like an elephant is sitting on my chest. We have done all of the right things but its still prowling at my door.I would not wish this on my absolute worst enemy. I was just curious if there have been any others with it and did they survive. I have 9 autoimmune disorders and on Ocrevus and Arava daily. Thank you for any imput.

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-04-04 06:55:34

Elk217015

04/04/2020 at 10:57 PM

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I'm so sorry to hear this! I hope you get the treatment you need & take care of yourself. I am praying for you I don't know anyone personally that has this but I have been laid off for over a week & with multiple sclerosis It's hard to know even what would happen with anyone like you/me! I have been at home & inside, I'm doing well but it's just a horrible thing.

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-04-04 22:57:46

egwcaw

04/15/2020 at 8:57 PM

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I'm hoping to hear from anyone with MS who's had the corona virus and survived! I'm completely convinced that if I get it, I'll just die.

I'm 70, was diagnosed with RRMS at 40, and have slipped into SPMS within the last year or two. Hoping to hear from anyone with MS who lived through COVID19. Carolyn

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Carolyn A. Walsh, MSN, RN

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-04-15 20:57:14

Mpuop02Ma

04/16/2020 at 3:57 AM

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I woke up 1 more ing & my feet were asleep , couldn't shake it off , within 3 days it went up to my waist , went to hospital, they thought it might be gillion bere & were afraid it might raise it up to my chest ,so they brought me to Boston , where the best hospitals , I couldn't control how to move my feet right, I couldn't raise them up high enough & my balance started to go I had to use a cane , went to neurologist , found 1 lesson on my spine but the spinal tap showed no rings , sent to MS specialist neurologist neurologic , been with him 12 years , then they found about 5 lessons on my brain , I am on about 10 meds ,,& doing infusion , getting worse, it's progression slowly , big trouble with balance. , & fog head & vibrations in my legs but still working

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-04-16 03:57:45

egwcaw

04/16/2020 at 7:40 PM

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Looks like some of us are just waiting to hear from another MS patient who has survived COVID 19.

It will come. Eventually we will hear from someone. Until then, it's good to be alive and have others to talk to and spend the day with, Carolyn

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Carolyn A. Walsh, MSN, RN

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-04-16 19:40:04

Bellabay12

04/27/2020 at 6:36 PM

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The Virus is still very scary to me. Not knowing how the MS meds could affect my immune system on getting this & recovery. With other underlying conditions makes me more afraid. At this point am needing to make decision on when I should return to work, my job is in retail grocery stores.

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Bellabay

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-04-27 18:36:24

MS and the Coronavirus - How are you handling the pandemic?

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