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Genetic testing: Would you want to know if you're at risk?
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Selkie319
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Selkie319
Last activity on 01/17/2025 at 12:33 AM
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I did, in fact, have genetic testing done, because my sister died of breast cancer. So, yes, I would want to know. As it turned out, I do not have the genetic markers for it.
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Somya.P
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Somya.P
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@Selkie319 Hi,
Thank you for sharing your experience—it’s such an important topic. I’m sorry to hear about your sister’s passing. 💜 It’s great to hear that you took the step of having genetic testing done, and I can imagine that finding out you didn’t have the markers brought a sense of relief.
How did you find the process of genetic testing? Did it change how you approach your health or future screenings? And for those in similar situations, would you recommend exploring genetic testing?
Looking forward to hearing your thoughts,
Somya from the Carenity team 🌼
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Somya from the Carenity team
Selkie319
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Selkie319
Last activity on 01/17/2025 at 12:33 AM
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@Somya.P The team at Yale got in touch with me. I had discussed it with a tech at my mammogram and she passed my name on to the genetic specialists at Yale. Glad I did it.
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Scott53
Scott53
Last activity on 01/07/2025 at 7:44 PM
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I think it's a good idea. I'm 71 and was recently diagnosed with Myasthenia Gravis. And although there is currently no cure, having known I may have been able to minimize the effects or even prolonged the triggering of the disease.
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Somya.P
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Somya.P
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@Scott53 Hi,
Thank you for sharing your perspective and experience. 💬 It’s really insightful to hear how you view genetic testing as a way to potentially manage or even delay certain conditions.
How are you finding life with Myasthenia Gravis since your diagnosis? Do you feel like learning about the condition has helped you navigate it better? And for others considering genetic testing, what advice would you share from your experience?
Looking forward to continuing the conversation,
Somya from the Carenity team 🌼
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Somya from the Carenity team
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Somya.P
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Somya.P
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Last activity on 01/16/2025 at 4:36 PM
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Hello everyone, how are you doing today? 😊
Genetic testing is now widely available and can reveal whether you are at an increased risk of developing certain diseases. For some, this information is empowering, offering the chance to prepare in advance or take targeted preventive measures. For others, it may feel overwhelming or raise questions about potential prejudices.
Let’s dive into this topic together:
Would you take a genetic test to know your health risks? Why or why not?
Have you or someone you know already tried such tests? What changed after knowing the results?
Are there any specific diseases you’d prefer not to know about in advance?
How do you feel about the ethics surrounding genetic testing?
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There’s no right or wrong answer here, it’s a deeply personal choice! We’d love to hear your thoughts, experiences, and reflections.
Looking forward to your responses!
Somya from the Carenity team 🌼