- Home
- Share
- Forum
- Ankylosing spondylitis Forum
- Living with ankylosing spondylitis
- What is your ankylosing spondylitis story? Let's share!
Patients Ankylosing spondylitis
What is your ankylosing spondylitis story? Let's share!
- 91 views
- 2 times supported
- 8 comments
All comments
SouthernBelle
Good advisor
SouthernBelle
Last activity on 07/21/2020 at 6:27 PM
Joined in 2020
7 comments posted | 6 in the Ankylosing spondylitis Forum
Rewards
-
Good Advisor
-
Contributor
-
Explorer
@Courtney_J Hi Courtney, thanks for keeping us busy on here! I was diagnosed about 10 years ago now in my 40's. I had been having a lot of pain and stiffness in my lower back over the years and eventually it got to the point where I went to the doctor for it. Low and behold, after a few scans and things they told me I had AS! I'd never even heard of it. I'm currently taking Cosentyx and it's been really great for me.
EmilyJP
EmilyJP
Last activity on 11/03/2023 at 1:19 PM
Joined in 2020
11 comments posted | 9 in the Ankylosing spondylitis Forum
Rewards
-
Contributor
-
Messenger
-
Explorer
@Courtney_J I was just diagnosed a few weeks ago. I'd been having severe back and neck pain. I assumed that it was from my years of dance as a kid and teen or from scoliosis, so I was shocked when they told me what it was. I've started taking some prescription NSAIDs and I'll be starting physical therapy and some yoga classes soon.
Somya.P
Community managerGood advisor
Somya.P
Community manager
Last activity on 11/22/2024 at 9:23 PM
Joined in 2023
385 comments posted | 6 in the Ankylosing spondylitis Forum
16 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
Hello, everyone! How are you doing today? 😊
Let me go ahead and revive this discussion with input from some of our new members:
@Mariben @Juzzdabomb1 @Msmothers72 @Ivysky24 @Lovinnerdythings @Pattie67 @Valentina @RJWysocki @Anna2641!! @Aubbie @Tina63 @Tmohrdonohue @Char4237 @Gaya1299 @hgraham1987 @Auriahem @Jakette @Laurie2172 @ShirtMac @Lilly1999 @LisaBell1969 @agrayson5287 @jmjj2456 @desiree7799 @Toni660 @Bearmom @MaryleePA @catherene @Odessa @MBWhitehouse @Ranlymberis @Jackieelkins79 @Kristie68 @NancyB @Gdepozsgay @lucasj @TerriJeanne @MsDiagnosed @Lonnie1 @Lmg21532 @Babegurl17 @Katkat @antonia3 @Nettyfitz @mariannamay @AdelevS @Iainrocks @Perm111 @MandyD @Snolen @MultiXx @Leonardotrue @FelinaStolk @meremesnell @Marns1978 @empengui @TerryReed @bitmap @Leahr215
Take care and have a wonderful day! 🌼
Somya from the Carenity team
See the signature
Somya from the Carenity team
Close all
See the responses
ordinaryheath
ordinaryheath
Last activity on 03/25/2024 at 9:49 AM
Joined in 2024
1 comment posted | 1 in the Ankylosing spondylitis Forum
Rewards
-
Explorer
@Somya.P [This content has been moderated by an administrator]
I'm new here.
Hide the responses
edprofess
edprofess
Last activity on 06/06/2024 at 4:49 AM
Joined in 2024
1 comment posted | 1 in the Ankylosing spondylitis Forum
Rewards
-
Explorer
I'm a newbie
@Fabbonusmom @rfhernandez01 @asaan32 @rgalarza2 @AS1218
anyaburke
anyaburke
Last activity on 07/12/2024 at 6:03 AM
Joined in 2024
Interested in Ankylosing spondylitis since 2024
2 comments posted | 2 in the Ankylosing spondylitis Forum
Rewards
-
Explorer
Many people with AS see multiple doctors before receiving the correct diagnosis. It's common for it to take several years from the onset of symptoms to get a definitive AS diagnosis @age of war
Close all
See the responses
agementjellied
agementjellied
Last activity on 09/17/2024 at 10:12 AM
Joined in 2024
Patient, Ankylosing spondylitis since 2024
1 comment posted | 1 in the Ankylosing spondylitis Forum
Rewards
-
Explorer
[This content has been moderated by an administrator for violating Carenity’s Terms of Use.] Then, all of a sudden, after a few scans and other procedures, they informed me that I had AS! I had never even heard of it before. I am currently on Cosentyx, and it has been incredibly helpful for me.
Hide the responses
Give your opinion
Members are also commenting on...
CDKennedy
I am in the severe range now at 74 yrs old. I have found thru trial and error and getting older with SA, I sleep on my back because I can hardly turn to my side now. I also take 10 mg Melatonin. I didn't know it came in 20 mg! (Thanks ladyslipper 67) What has really help with my back pain, when in bed, is a large memory foam wedge. The large end is under my knees and my legs go down to the small end. It doesn't move when I sleep but then again I am not turning over back and forth. This takes the pressure off my back. I hope this helps someone.
See the best comment
CDKennedy
I am in the severe range now at 74 yrs old. I have found thru trial and error and getting older with SA, I sleep on my back because I can hardly turn to my side now. I also take 10 mg Melatonin. I didn't know it came in 20 mg! (Thanks ladyslipper 67) What has really help with my back pain, when in bed, is a large memory foam wedge. The large end is under my knees and my legs go down to the small end. It doesn't move when I sleep but then again I am not turning over back and forth. This takes the pressure off my back. I hope this helps someone.
See the best comment
Articles to discover...
03/18/2024 | News
03/11/2024 | Nutrition
01/12/2024 | Advice
Who should be on your ankylosing spondylitis (AS) healthcare team?
10/16/2018 | Testimonial
Ankylosing Spondylitis: More Than Fifteen Years of Pain to Finally Live a Better Life
06/15/2020 | Testimonial
Testimonial: "More than two months later, I'm still not completely recovered!"
07/16/2021 | Advice
02/10/2022 | Advice
Ankylosing spondylitis: What are flare-ups and how to manage them?
Medication fact sheets - patient opinions...
Subscribe
You wish to be notified of new comments
You have been subscribed
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 23 in the Ankylosing spondylitis Forum
6 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Explorer
Friend
Hello everyone,
How are you today?
I thought I would open this discussion so that we can get to know one another better!
So, what is your ankylosing spondylitis story? When and how were you diagnosed? Did you receive your diagnosis right away or did it take multiple doctors to diagnose your AS? What treatments have you tried and how are you doing today? Do you have any advice to share with someone newly diagnosed with AS?
@Drfootball @brownie17 @Kmartin143 @pnj0113 @Mary1954 @Shadora @Dyllan @Justmichelle91466 @Jodyolson69 @Jillybug @toniboroni123 @Wiederich @DiannePunky @bhoney4829 @Kaykayloveee @jford76 @Claracaïl @joslynbauer
Feel free to share your story here!
Take care,
Courtney