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Can lupus cause hair loss? How to cope?
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mvn481
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mvn481
Last activity on 09/02/2023 at 12:01 AM
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70 comments posted | 25 in the Living with lupus group
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I experienced hair thinning and minor hair loss prior to my diagnosis. Since I have been on treatment, I have not experience much hair loss, however.
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Skyisthelimit32
Skyisthelimit32
Last activity on 03/18/2023 at 6:48 AM
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It might be the medication too. Anyway, hope you feel better :)
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Tzwifey99
Tzwifey99
Last activity on 10/21/2024 at 3:42 AM
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I have recently been dx. with lupus but I’ve been dealing with fibromyalgia, UCTD and graves dz. I thought the hair thinning was from the graves dz. (thyroid dz)., but I was told by my Dr that it was lupus. I’m a mess right now. I’m always fatigued and in pain. My family try’s to be supportive but it’s hard to relate to something you know nothing about. I just purchased nioxin hair treatment. I was told it would help with thinning hair and hair loss. I am starting to have problems with a rash on my face. Can someone please tell me what I can use for this. Sincerely, Tzwifey99
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Tzwifey99
jasmine1092
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jasmine1092
Last activity on 11/16/2023 at 1:34 AM
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@Tzwifey99 what medication are you on? some medications can cause hairloss also.
Shimurph
Shimurph
Last activity on 01/23/2020 at 5:01 PM
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Cassandra1
Cassandra1
Last activity on 08/21/2018 at 5:10 AM
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I been suffering with lupus for a long time some days are good and some are bad.. I have fibromyalgia,RA,I suffered 2 heart attack’s and I have 14 stents lupus has done a number on my body.. I’m always in pain and always have server chest pain it’s very hard living with lupus.. but I have a lot of support and it keeps me going
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Does anyone here take Biotin supplement to deal with hair loss? Is is effective in reducing thinner hair and hair loss?
lupus38
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lupus38
Last activity on 01/10/2023 at 10:56 AM
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@eleanee Yes! It makes your hair thicker! I also am taking collagen which has been, I believe, helping also. I also make sure now that my hair products have no parabens and sulfate. My hair now thicker and growing better than before! I cannot say it is soley because of the collagen and biotin and new hair products, but it must be helping. I also am taking fish oil now.
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@lupus38 thank you so much. I suffered from hair loss and fatigue because of lupus medications. Some people also recommend me Bitoin and Lupufree supplements to take, I'm hesitant between them.
jolove
jolove
Last activity on 12/11/2019 at 1:35 AM
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my hair all of a sudden started really fall out. Had some blood workdone again my vitamin D level was a 9 it is suppose to be 100. so started taking vit. D things are better.but as you know lupus is different with everyone. jolove
lupus38
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lupus38
Last activity on 01/10/2023 at 10:56 AM
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I just wanted to update this post. The fish oil doesn't seem to be working, but the hair loss is less than before. It's true that I changed my diet (trying keto and avoiding sugar and dairy), so maybe it's that. Will update you all in another few months.
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lupus38
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lupus38
Last activity on 01/10/2023 at 10:56 AM
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91 comments posted | 49 in the Living with lupus group
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It might be the medication too. Anyway, hope you feel better :)