How do you deal with MS flare ups?

@mrscarone‍ Hello mrscarone, thank you for starting this discussion. I'm so sorry you're going through that. Please keep us updated on how you're doing if you feel up to it. We'll be keeping you in our thoughts!

Hello members, I hope you don't mind me tagging you. What do you do to cope with flare-ups? Do you have any advice or words of encouragement for mrscarone?

@Lisaddavis‍ @KristieAnne‍ @Pennyf‍ @Ecjnhay‍ @KimberlyCollins‍ @Jenpags‍ @michelle31110602‍ @Eppersonr‍ @Cathyoli‍ @amymblar1974‍ @Brensanti5‍ @gdreadi‍ @Tattoomom‍ @Lisaamillie‍ @Iodine‍ @2THEMOORES‍ 

Take care,

Courtney

I don’t know how to deal with that flareups hurt so bad I don’t have any family support I have nothing to advise you with my friends don’t even understand did you tell me I’m being re-re-

Hi everyone, 

Flare-ups are the worst... It is really hard to cope physically and mentally. I'm so sorry to read that you're in pain @mrscarone‍ Personally, I'm trying to prevent them by avoiding stress. Everyday, I'm doing some exercices of yoga or just meditation if I'm not feeling so good. And I try to be as rested as I can be.

Obviously, support from your loved ones is important but family and friends don't always understand...  And you can find this support elsewhere @KimberlyCollins‍  don't hesitate to share your feeling, your joy or your pain here. There are some really good listeners on Carenity. 

Flare ups are dreadful. My daughter lives with me and even she doesn't get it. I am refusing iv steroids right now so I ask her to leave me to myself for the most part. When I need help she's there to help me. The thing that helps me the most is prayer. It cuts my depression time in half with a flare up. Keeping your spirits up keeps the stress level down.  Reducing stress especially during a flare reduces the length of the flare. 

@KimberlyCollins What really helps me besides preventive measures (anti-stress things like stretching, etc.), are the steroids my doctor prescribes. It stops the inflammation and helps everything calm down.

Hello everyone,

How are you doing? Have you seen our latest article about MS? In it we explain MS relapses: How to manage an MS relapse?

How do you handle your MS flare-ups or relapses? What types of symptoms do you experience? Do you know what triggers them?
@Lenny651‍ @Amommy306‍ @Charlene1952‍ @lrestoff‍ @NarimanSerry‍ @10sister02‍ @jbarrus‍ @mylovinghusband‍ @Mustang08‍ @Chigirl‍ @NourElatky‍ @Spring‍ @ajsilverman‍ @kimkim51p0‍ @cathybuffalo‍ @Oneal61‍ 

Feel free to share your thoughts, experiences, and any advice you may have here!

Take care,
Courtney

My flare ups are maninly numbness in the right leg, left hand, and my head, What triggers them are mostly being anxious or upset. Sometimes crying as well starts a relapse. The worst part is headaches. They are almost daily and severe. I just rest and have a deep sleep with a pain killer.. That’s it.

I was diagnosed about a year ago and it took the prior year to figure out what was causing my symptoms.  My neurologist and I have been working to get my symptoms under control.  I have went from a oral medication to fusion.  I have only been on the infusion for a few weeks and it seems to be helping.

I have had many symptoms such as numbness, weak extremities, trigeminal neuralgia, nerve pain, extreme fatigue, vision issues and hearing loss.  I have been sleeping a lot and really haven't found anything that works.  I try to walk as much as I can in the neighborhood.

Hi all,

How are you doing? Have you seen this discussion?

For some of our newer members, what are your flare-ups like? How often do they occur? How do you get through them?
@Raebae‍ @Mssm01‍ @NolanAz‍ @Shahkey‍ @Armywifecfms6675‍ @rgoldsmith‍ @LindyWhitedove‍ @ArturK‍ @vonstar28‍ @MSlupuswarrior‍ @Julie9258‍ @tinawest9877‍ @JennaGreen‍ @Karen9905‍ @Nicki21‍ @Dselle00‍ @HrlyBabe4‍ 

Feel free to share with us here!

Take care,
Courtney

My MS has been dormant for over a decade now but my flares/exacerbations/attacks were mostly going blind and losing feeling to parts, half or my entire body and once I switched to my current neurologist about 20 years ago I would immediately head to the hospital and get high dose solumedrol steroids in an attempt to prevent permanent damage or additional damage from being done. My last attack I lost all feeling throughout my entire body and went completely blind yet again, this time after 5 days of high dose steroids there was no improvement, 5 days more still nothing, 5 days more I began seeing a little light, 5 more days my vision began to come back and I was able to use my body but still couldn't feel a thing. So a 6 month pulse treatment(500mg IV solumedrol every other week) and by the end of those 6 months I had regained my vision completely but still couldn't feel anything. So we figured that it was just my new normal. About 6 years later I burned my hand testing the doneness of pasta as I had been doing for years at that point and it actually hurt, so naturally I did it again as must have imagined the pain, nope, still hurt, the some minor sensation began to return to other parts of my body so I immediately thought that I must have new active lesions and called mt neurologist who got me in for full MRI'S the next day. No new lesions, my immune system had repaired some of the previous damage it had caused and even began replacing some of the myelin sheath it had destroyed over the decades. I have regained a little more feeling every year since and go for new MRI'S next month to see if my immune system is still behaving. He also had me switch my birth control to a progesterone only one (awful contraceptive though lol) to trick my body into thinking that I am constantly pregnant since he saw many of his patients who became pregnant tended yo put their MS in remission so we figured why not try. After my last attack I also switched my dmd to Betaseron after over a decade of symptom and side effect free years on Copaxone we figured it lost it's efficacy, I also changed my diet to 96% clean eating so I don't know what exactly worked or if it was the combination of everything I did but I am a big fan of if it ain't broke, don't try to fix it.