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- Have or are you working with rheumatoid arthritis? How does RA affect it? Share your experience
Have or are you working with rheumatoid arthritis? How does RA affect it? Share your experience
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Shellibelli
Shellibelli
Last activity on 04/07/2020 at 5:24 PM
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3 comments posted | 3 in the Living with rheumatoid arthritis group
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Is she medicated?
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Shellibelli
Shellibelli
Shellibelli
Last activity on 04/07/2020 at 5:24 PM
Joined in 2020
3 comments posted | 3 in the Living with rheumatoid arthritis group
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Shellibelli
acb0945
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acb0945
Last activity on 02/09/2021 at 5:32 PM
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20 comments posted | 10 in the Living with rheumatoid arthritis group
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I'm lucky that I work at a desk job in a private company so I'm not on my feet all day. They're flexible with me so I can work from home when I have a bad day. Some days are rough on my hands being on a computer all day. I will definitely be looking into some of those gloves and computer mice you've recommended!
JimBlas
JimBlas
Last activity on 05/20/2020 at 8:47 PM
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1 comment posted | 1 in the Living with rheumatoid arthritis group
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Hello just a question I’ve had RA about 8 yrs been on methotrexate for the whole time about 6-8 months ago the metho seem to stop working as well as it did ,my Rum. Dr told me I prob need to go to a biologic prescribed Jelzanx which was way to expensive then Humaria which is still out of my ins range has anyone found a medication that will work with the methotrexate that doesn’t cost as much , or a genaric med that will help thanks
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sandy_steelergirl
sandy_steelergirl
Last activity on 09/14/2020 at 8:42 PM
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2 comments posted | 2 in the Living with rheumatoid arthritis group
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I feel like every month is a loss of abilities and stamina. The full time RA diagnosis came June 2019 and at that time I could hike a 7 mile aggressive hike and walk 3-4 times a week 3-4 miles and within a month I struggled to do a low impact hike of 2 miles. Other activities and stamina have continued downhill slide. I'm on 3rd drug regimen and don't have high hopes. I either drink 1-2 high caffeine drinks a day to make it through or work around sleeping 11-12 hours a day :(. Feel like my life went from 150 MPH to 25 MPH over the past year and concerned about how I'll be able to keep working as an IT project manager with no travel. Also, as a single individual supporting a son with mental health issues pursuing SSDI I'm concerned with finances. Socially it is hard to do all of the activities that I enjoyed so much!
mrrodges38
mrrodges38
Last activity on 01/12/2024 at 12:50 AM
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3 comments posted | 3 in the Living with rheumatoid arthritis group
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I work a desk job like a bunch of people on here, and I had to ask for a better chair for my desk and something to raise my computer up higher so it's at more comfortable height for me. Sitting for long periods really bothers my hips so I make a point to get up and take a walk around the office at least once an hour. Coffee is a must-have for me to keep me going too.
I never disclosed to my employer though because I didn't want them to hold anything against me or have an excuse to not promote me or anything. Have you all told your companies or bosses about your RA?
msRA1962
msRA1962
Last activity on 07/23/2020 at 5:58 PM
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10 comments posted | 8 in the Living with rheumatoid arthritis group
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@sandy_steelergirl I understand that feeling that your life has slammed on the breaks. The fatigue is just awful. I was reading an article the other day that said that one-third of people with RA stop working within 5 years of their diagnosis. The challenge is real. I feel like I need an IV of caffeine in the afternoons too.
@mrrodges38 I told my boss after about a year because she noticed that I seemed tired. I'm lucky that she's been super supportive and has done a lot to help me out.
DonnaK
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DonnaK
Last activity on 08/22/2024 at 12:13 AM
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35 comments posted | 26 in the Living with rheumatoid arthritis group
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So glad you both can. Continue working. I must even thru this pandemic. But I am checking with SS and plan to stop working in January
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sandy_steelergirl
sandy_steelergirl
Last activity on 09/14/2020 at 8:42 PM
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2 comments posted | 2 in the Living with rheumatoid arthritis group
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@JimBlas my doctor tried Actemra injections that had copay card and now on Actemra via infusion as the injections weren't strong enough. She also just started me on Sulfasalazine 500 mg that is to titrate up to 1500 mg and then plans to taper me down and hopefully off of prednisone. It didn't cost much and has generic form.
A lot of the injections have copay cards as they are expensive.
DonnaK
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DonnaK
Last activity on 08/22/2024 at 12:13 AM
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35 comments posted | 26 in the Living with rheumatoid arthritis group
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Hoping the best for you
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DONNA K
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Lee__R
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Lee__R
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Last activity on 04/03/2020 at 5:04 PM
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1,338 comments posted | 44 in the Living with rheumatoid arthritis group
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Hello members,
Rheumatoid Arthritis can impact many areas of one's life and one of those is their employment.
Are you currently working? What is your job title and what does a typical day look like?
Does RA affect your ability to perform your job tasks? Have you made any modifications?