Do you use Botox injections for your dystonia?

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Lee__R

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03/06/2019 at 5:02 AM

Good advisor

Lee__R

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1,338 comments posted | 20 in the Treatments for dystonia group

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Hello members,

Botulinum toxin injections are one of the major treatments for focal dystonia.

Are you aware of this treatment? Have you had, or are your currently having, this treatment? If so, how often?

Do you find these injections effective and beneficial? Painful?

Let's all discuss this treatment method together, share experiences/opinions, ask questions, and give advice!

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Awatchman

09/24/2019 at 8:03 PM

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Last activity on 03/26/2020 at 5:40 PM

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28 comments posted | 23 in the Treatments for dystonia group

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What part of your body does the focal dystonia affect?

Do you use Botox injections for your dystonia? https://www.carenity.us/forum/other-discussions/treatments-for-focal-dystonia/do-you-use-botox-injections-do-you-inject-botulinum-toxin-818 2019-09-24 20:03:39

russode

09/25/2019 at 6:18 PM

russode

Last activity on 03/30/2024 at 12:06 AM

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6 comments posted | 6 in the Treatments for dystonia group

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My neck Plus I have head tremors

Awatchman

09/26/2019 at 8:11 PM

Awatchman

Last activity on 03/26/2020 at 5:40 PM

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28 comments posted | 23 in the Treatments for dystonia group

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@russode I am dealing with focal hand dystonia. Doctors and experts don't know what to do with this one.

russode

09/26/2019 at 8:14 PM

russode

Last activity on 03/30/2024 at 12:06 AM

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6 comments posted | 6 in the Treatments for dystonia group

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Oh gosh I'm sorry.

Awatchman

09/27/2019 at 9:50 PM

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@russode it's a bummer...

Jaytwothree

10/11/2019 at 10:26 PM

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@russode how old old are you if you don’t want me asking. I first starting getting Botox shots when I was 22. Did it for about 2 years every four months.

russode

10/12/2019 at 4:22 AM

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I am 50 and just got my second round of botox shots. I'm a little concerned I'm not sure if this second round is working as good as the first round did I feel like I have more pain and tremors then after the first round I hope I'm wrong

Jaytwothree

10/12/2019 at 7:26 AM

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It’s such a trip because since they can’t just give you another dose right away and have to wait at least 3 months. At least that’s what they told me. As far as the long term effects I don’t think there is any proof or research that shows that there are any severe issues. I have heard of people even getting shots on the front side of the neck. I remember my fear would be swallowing food since I had read something about people haven’t difficulty. How long have you had the dystonia. I’m 28 now. Diagnosed when I was 22.

Jaytwothree

Edited on 10/12/2019 at 8:15 AM

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russode

10/12/2019 at 5:13 PM

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I have had the head tremors and my head being pulled in a direction for at least 10 years now but was told nothing could b done and not diagnosed until this year. When I was in so much pain was in tears they finally sent me to a neurologist who diagnosed me Do u feel like the shots are working for u the same level as when u first started getting them? U r young to have that to deal with.

Do you use Botox injections for your dystonia?

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