How do you manage the pain caused by your dystonia?

Hello. I've had secondary dystonia since 2007 after a brain injury. I am so confused. I spend half of my life in bed. Before dystonia I was never in bed. I don't sleep. I'm in incredible pain. 

Botox didn't help, meds didn't help, 

My girlfriend will come over and visit me and I look like a different person. My eyes are sunk. My body is so uncomfortable and the pain is so bad I just evaporate. 

I've tried everything. I've been going to a pain management clinic for sometime but my doctor treats me like I have a sprained ankle. I don't want to be loaded on meds. But I want to be able to live. 

The one love I have left is being able to play tennis. even though I have walking issues I can still play tennis (since I played as a junior)  on a good week I can play two times a week.  

A few years ago I was able to play more but the dystonia / pain is to much

Do people with dystonia need pain medication so they can get out of bed and be active and try to be alive?