Experience with Lupron treatment and side effects

546 views
4 times supported
39 comments

Lee__R

Community manager

07/17/2019 at 5:04 AM

Good advisor

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,338 comments posted | 23 in the Treatments for prostate cancer group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend
Top chef

View profileView Add a friendAdd Write

Hi everyone,

There has been many comments made about Lupron injections, the benefits/success, and side effects in several discussions, with some comments or questions regarding becoming lost in the unrelated topic discussions in which they are made.

Therefore, I am creating this discussion for members to discuss any questions and concerns they have regarding Lupron injections, from sharing experience, discussing the side effects, the success/benefits, etc.

(However, please feel free to also create any specific discussion topics related to Lupron injections)

All comments

Go to the last comment

Lee__R

Community manager

07/17/2019 at 5:20 AM

Good advisor

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,338 comments posted | 23 in the Treatments for prostate cancer group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend
Top chef

View profileView Add a friendAdd Write

Hi members. I had noticed you had expressed some concerns, questions, experience, or advice about Lupron injections on other other discussions. Since there were comments about Lupron injections spread throughout the Prostate Cancer forums, I wanted to let you all know that I have created this specific discussion for Lupron treatment discussion in hopes to help facilitate any future discussion on this topic. Hope this helps.

@Raymond‍ @Rbeck1234‍ @Jolihemi5‍ @Bottomlessbob‍ @Perrie123‍ ‍

Experience with Lupron treatment and side effects https://www.carenity.us/forum/other-discussions/your-opinion-on-prostate-cancer-treatments/experience-with-lupron-treatment-and-side-effects-1176 2019-07-17 05:20:51

jonlo11

07/23/2019 at 5:35 AM

jonlo11

Last activity on 12/29/2022 at 11:41 AM

Joined in 2019

18 comments posted | 15 in the Treatments for prostate cancer group

Rewards

Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

Side effects are not fun: bone pain, joint pain, extreme fatigue, did I mention pain?

Unregistered member

08/19/2019 at 6:34 PM

Lupron caused sever fatigue, joint pain, and no libido for me. I had the 45mg injection which lasted 24 weeks, and then some.

i also gained about 15 lbs.

Pfeier

09/03/2019 at 12:30 AM

Pfeier

Last activity on 09/07/2019 at 8:54 PM

Joined in 2019

1 comment posted | 1 in the Treatments for prostate cancer group

Rewards

Explorer

View profileView Add a friendAdd Write

I have been lucky with the Lupron. No significant side effects except fatigue. But I am taking Efexor for depression and that prevented the hot flashes so far.

Vikndoc1

09/06/2019 at 12:23 AM

Vikndoc1

Last activity on 11/28/2020 at 9:07 AM

Joined in 2019

4 comments posted | 4 in the Treatments for prostate cancer group

Rewards

Explorer

View profileView Add a friendAdd Write

Fatigue, lassitude, could sleep forever, nausea (probably the worst S/E), muscle ache with exertion, purpura on arms, nocturia, fatigue.

Vikndoc1

09/06/2019 at 1:38 AM

Vikndoc1

Last activity on 11/28/2020 at 9:07 AM

Joined in 2019

4 comments posted | 4 in the Treatments for prostate cancer group

Rewards

Explorer

View profileView Add a friendAdd Write

I forgot to mention dysgeusia, a terrible taste in the mouth.

JamesB

10/07/2019 at 8:00 PM

JamesB

Last activity on 02/06/2020 at 9:37 PM

Joined in 2019

15 comments posted | 13 in the Treatments for prostate cancer group

Rewards

Contributor
Explorer

View profileView Add a friendAdd Write

I have been living with Lupron for the last two years. Have been battling prostate cancer for 10 years and metastatic bone for the last two. The Lupron has kept my PSA in check, but the bone pain, combined with the Lupron have worn me down. Pain management with Norco gives me just enough relief to function, but being alive is not really living with much quality. I am seriously considering just ending the Lupron and will be having that discussion with my oncologist this week. Does anyone have any advice or suggestions? I have always been a fighter with deep faith, but have run into a wall! My God bless all of you that are fighting with this or any other type of cancer challenges!🙏

See the signature

James Bennett

Perrie123

10/13/2019 at 3:05 AM

Perrie123

Last activity on 03/05/2021 at 5:09 PM

Joined in 2019

87 comments posted | 55 in the Treatments for prostate cancer group

1 of their responses was helpful to members

Rewards

Contributor
Explorer
Newsfeeder

View profileView Add a friendAdd Write

I am happy to have chronic fatigue. This is far superior to any abusive urological woman's empowerment exercise or dominatrix spectator sport and l would rather die than be abused again by females and the male urologists who serve as their co-conspirators. Why can men not be given professional examinations with respect for our dignity, privacy and safety? I hope to expire with the chronic fatigue I am experiencing rather than have females abuse and torture me. Nothing is worse than abusive torture as a pretext for a urological procedure.

Rbeck1234

11/04/2019 at 7:12 PM

Good advisor

Rbeck1234

Last activity on 09/26/2021 at 7:48 AM

Joined in 2019

24 comments posted | 21 in the Treatments for prostate cancer group

Rewards

Good Advisor
Contributor
Explorer
Friend

View profileView Add a friendAdd Write

@JamesB

my condition parallels yours. The bone paid and muscle aches became too much to bear. I was sent to the local university and was given the choice to stop the 90 day Lupron injections for some period. The upside is I will get a break from it’s effects, up to a year or longer. The downside is I won’t live as long. This is ok with me.

JamesB

11/05/2019 at 7:48 PM

JamesB

Last activity on 02/06/2020 at 9:37 PM

Joined in 2019

15 comments posted | 13 in the Treatments for prostate cancer group

Rewards

Contributor
Explorer

View profileView Add a friendAdd Write

@Rbeck1234 I

See the signature

James Bennett

Experience with Lupron treatment and side effects

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

Articles to discover...