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Experience with Lupron treatment and side effects

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Lee__R

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07/17/2019 at 5:04 AM

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Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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1,338 comments posted | 23 in the Prostate cancer Forum

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Hi everyone,

There has been many comments made about Lupron injections, the benefits/success, and side effects in several discussions, with some comments or questions regarding becoming lost in the unrelated topic discussions in which they are made.

Therefore, I am creating this discussion for members to discuss any questions and concerns they have regarding Lupron injections, from sharing experience, discussing the side effects, the success/benefits, etc.

(However, please feel free to also create any specific discussion topics related to Lupron injections)

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Lee__R

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07/17/2019 at 5:20 AM

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Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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1,338 comments posted | 23 in the Prostate cancer Forum

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Hi members. I had noticed you had expressed some concerns, questions, experience, or advice about Lupron injections on other other discussions. Since there were comments about Lupron injections spread throughout the Prostate Cancer forums, I wanted to let you all know that I have created this specific discussion for Lupron treatment discussion in hopes to help facilitate any future discussion on this topic. Hope this helps.

@Raymond‍ @Rbeck1234‍ @Jolihemi5‍ @Bottomlessbob‍ @Perrie123‍ ‍

Experience with Lupron treatment and side effects https://www.carenity.us/forum/prostate-cancer/your-opinion-on-prostate-cancer-treatments/experience-with-lupron-treatment-and-side-effects-1176 2019-07-17 05:20:51

jonlo11

07/23/2019 at 5:35 AM

jonlo11

Last activity on 12/29/2022 at 11:41 AM

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18 comments posted | 15 in the Prostate cancer Forum

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Side effects are not fun: bone pain, joint pain, extreme fatigue, did I mention pain?

Unregistered member

08/19/2019 at 6:34 PM

Lupron caused sever fatigue, joint pain, and no libido for me. I had the 45mg injection which lasted 24 weeks, and then some.

i also gained about 15 lbs.

Pfeier

09/03/2019 at 12:30 AM

Pfeier

Last activity on 09/07/2019 at 8:54 PM

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1 comment posted | 1 in the Prostate cancer Forum

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I have been lucky with the Lupron. No significant side effects except fatigue. But I am taking Efexor for depression and that prevented the hot flashes so far.

Vikndoc1

09/06/2019 at 12:23 AM

Vikndoc1

Last activity on 11/28/2020 at 9:07 AM

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4 comments posted | 4 in the Prostate cancer Forum

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Fatigue, lassitude, could sleep forever, nausea (probably the worst S/E), muscle ache with exertion, purpura on arms, nocturia, fatigue.

Vikndoc1

09/06/2019 at 1:38 AM

Vikndoc1

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I forgot to mention dysgeusia, a terrible taste in the mouth.

JamesB

10/07/2019 at 8:00 PM

JamesB

Last activity on 02/06/2020 at 9:37 PM

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15 comments posted | 13 in the Prostate cancer Forum

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I have been living with Lupron for the last two years. Have been battling prostate cancer for 10 years and metastatic bone for the last two. The Lupron has kept my PSA in check, but the bone pain, combined with the Lupron have worn me down. Pain management with Norco gives me just enough relief to function, but being alive is not really living with much quality. I am seriously considering just ending the Lupron and will be having that discussion with my oncologist this week. Does anyone have any advice or suggestions? I have always been a fighter with deep faith, but have run into a wall! My God bless all of you that are fighting with this or any other type of cancer challenges!🙏

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Perrie123

10/13/2019 at 3:05 AM

Perrie123

Last activity on 03/05/2021 at 5:09 PM

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I am happy to have chronic fatigue. This is far superior to any abusive urological woman's empowerment exercise or dominatrix spectator sport and l would rather die than be abused again by females and the male urologists who serve as their co-conspirators. Why can men not be given professional examinations with respect for our dignity, privacy and safety? I hope to expire with the chronic fatigue I am experiencing rather than have females abuse and torture me. Nothing is worse than abusive torture as a pretext for a urological procedure.

Rbeck1234

11/04/2019 at 7:12 PM

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Rbeck1234

Last activity on 09/26/2021 at 7:48 AM

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@JamesB

my condition parallels yours. The bone paid and muscle aches became too much to bear. I was sent to the local university and was given the choice to stop the 90 day Lupron injections for some period. The upside is I will get a break from it’s effects, up to a year or longer. The downside is I won’t live as long. This is ok with me.

JamesB

11/05/2019 at 7:48 PM

JamesB

Last activity on 02/06/2020 at 9:37 PM

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@Rbeck1234 I

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03/21/2019 at 1:00 AM

I made the decision to have my proste removed and it was not an easy time... just as hard as finding out you had prostate cancer... I was advised by my doctors the surgery was the best option because of my age and the harmful affects of radiation longterm. For me, once I made the decision, I did have the peace of mind knowing that the actual cancer was "removed" instead of just treated... which, I guess, did give me some sense of comfort.

The biggest issue for me once the surgery was done and I was on the road to recovering was the effects it had on me emotionally/psychologically, which many people in my opinion overlook. I encourage anyone and everyone, when diagnosed with prostate cancer, before and after treatment and during, to seek psychological help... there is nothing wrong with it. Medications, counseling, and just talking about your feelings can help tremendously. Do not hold it all in and try to battle the anxiety and depression because this diagnosis will affect you, no matter how strong you may consider yourself to be.

The sexual effects treatment has on you will also affect you mentally, because your sexual ability and ability to have kids will likely be affected. Your performance ability can be likely fixed, but it can still affect you mentaly. Take care of yourself.

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03/21/2019 at 1:00 AM

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