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I can't get used to my CPAP mask
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jesvideo
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jesvideo
Last activity on 11/18/2024 at 6:45 PM
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After fighting my C-Pap for over a year someone finally tells me that my mask size is too large and I need a medium. So now it's a little better but I still have to make sure my mask is on before I say prayers at night or I will zonk off to sleep without the mask on. I know how drained I will feel if I don't wear it so I do. But its still so tight on my face. Getting a my pillow to sleep on I can place my shoulder underneath it for support which helps some. It's just something I know I have to do. One day I forgot to wear the mask and then another day and on that second day I started coughing for air and knew I had to grab the mask to breathe,. My coughing finally settled down and quit all together. That was a big lesson for me about having to wear the mask to get enough oxygen to function.
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jesvideo
hundal
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hundal
Last activity on 03/31/2023 at 9:02 AM
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Mostly avoid using a mask if you are single and have asthma.
Gnorts58
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Last activity on 07/15/2024 at 6:59 AM
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It is hard to get used to it. I have mine for overn6 years some nights are tough. Hang in there. Pray for a breakthrough for an alternative. Look up sleep apnea research studies for new or different equipment. Then see if your insurance covers them. Praying for you.
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Cns
Dr.WhoPeggygmail.com
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Dr.WhoPeggygmail.com
Last activity on 12/02/2024 at 12:50 AM
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Hi @Allinitsleep. I hear u, & understand too. But, there are different kinds of masks ppl can use. A nasal pillow, full face mask, & others too. I wish u well.
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Peggy Erickson
Selkie319
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Selkie319
Last activity on 12/02/2024 at 12:35 AM
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When my cpap was recalled I had to wait 18 months until I got a new one. Let me tell you, I have never appreciated my cpap like I do now. Going without it was even worse after having one for a couple of years. Yes, I hate the mask. I don't think anyone likes to have something on their face when they're sleeping. But it really is what you have to do. And that's the lesson I learned when I lost my machine during the recall. Falling asleep and falling out of the chair and landing on the floor is not a way you want to live your life. This is what I do. I use eyedrops because sometimes the mask leaks and dries out my eyes. I used saline nasal spray because, even with the humidifier, my nose gets dried out. My mask is a triangular shaped mask that goes over my nose and my mouth. I hate the silicone "cushion", but that's the way they're made. I went to my sleep doctor last week and told her all of my issues (mainly leaks from the mask), but I told her that in spite of that I would NEVER go without this mask again. I learned my lesson during the recall. I know I'm repeating myself here, but breathing properly at night has a side effect on all your other organs; your heart, blood pressure, lungs. If you want to live better, just let the cpap do it's thing.
Hopester30
Hopester30
Last activity on 11/25/2024 at 8:23 PM
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There are therapists that can help with that. Also try to have a positive attitude, stop thinking negatively. I really can’t get used to it either but I know I have to wear it. I have friends and family who did not comply with Cpap therapy and they developed a-fib among other things. I also tried different masks.
SallyAllen
SallyAllen
Last activity on 11/26/2024 at 12:46 AM
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@Allinitsleep - I hear you loud and clear - I hate my mask too. If you can't get a different type of mask, ask your sleep doctor to adjust the pressure on your machine. I was struggling with the feeling of smothering, too, and I told my sleep doctor. She had my pressure set at 19 because of my severe sleep apnea. She lowered the pressure a few times until I felt more comfortable.
Now I'm struggling with my mask again since they changed the style. People with pacemakers aren't supposed to use the type of mask with magnets, so they sent me a new clip-on type of mask. The part around my mouth and nose changed and now I'm back to the smothering feeling! Not as bad as when my pressure was too high, but still, any little change seems to ramp up my anxiety.
It just never ends, does it? Hang in there!
Somya.P
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Somya.P
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Last activity on 12/03/2024 at 5:03 PM
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Hello everyone,
I'm reopening this discussion since this is a situation many people would sleep apnoea I can relate to.
For those of you who have struggled with CPAP, have you found any tricks or adjustments that made the mask more bearable? Maybe switching to a different type of mask or making small changes helped improve your experience? Also, if you’ve felt like giving up on the CPAP, what motivated you to keep going?
@Jabaker99 @Lacy1893 @MrsMaryS @Reba825 @marvalisa212 @Pfarthing05 @karritous @Jujubee @KarenF @Petra1 @Kong609 @Irv544 @SleepBetterNation @BrianF @Redhorse96 @AllegraPaige @STEVIE1010 @jesvideo @Akoweck @eaglefaith5 @Donnastom @OHIfeelbest @Fleet5 @Trish8414 @richmay1 @Rhunt65 @Donanena @PatOz7 @Agnes2 @HC1122 @Bouttem @tweetybird @Plogan214 @Roddie @Ghidorah9 @Mljackson @Odissmith @Skean63 @306391 @Dr.WhoPeggygmail.com @NanaSylvia @Ritamae @Sassy6 @MR.JODYWILKER @StevenW @dorothyb51 @rmorriso @Mclaugj @allanhansen @Zainab
Your words could really help others with the same issues.
Looking forward to hearing your thoughts! 😊
Somya from the Carenity team 🌼
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Somya from the Carenity team
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MrsMaryS
MrsMaryS
Last activity on 12/02/2024 at 1:12 AM
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@Somya.P I just couldn't wear the CPAP and just stopped using it. Then about a year ago I decided to check into the Inspire. I saw an ENT and he did a sleep endoscopy on me and said that an oral appliance would work for me. So, I got that. My sleep study score before the appliance was 19.4. After using the appliance, I'm now at 4.9. The goal was below 5. It's so much easier and I've adjusted to it very easily. I'd recommend anyone check into it, if you have trouble with a CPAP. You do have to see a dentist that prescribes them.
jesvideo
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jesvideo
Last activity on 11/18/2024 at 6:45 PM
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@Somya.P I have tried changing to a smaller mask which helped a little but it still pinches my nose and I hate it! Last week I finally got my new C-Pap machine. My old one made the air inside I was breathing smell like burn toast. Now I'm breathing clean air again but still, I hate using this thing but I have no choice so far. If I miss using it for a night I wake up feeling like crap. I have brain fog, low energy, and even some trouble speaking at times and I doze off. So right now I have no choice if I want to keep living but to keep using it until something better comes along.
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jesvideo
PatOz7
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PatOz7
Last activity on 11/09/2024 at 5:07 PM
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@MrsMaryS I ditched my machine for the oral device too. It worked great for several years. Then my teeth started shifting and giving me problems. I admit I didn’t use the plastic guard you’re supposed to put in after you take the device out to prevent that. I found out I’m too old for the Inspire surgery.
I’m back on the cpap machine and I hate it. The services offer by the supplier are no more. I can’t even get a respiratory therapist to help me. They used to come to your house or meet you in their office. No it’s advice over the phone. Totally useless!
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Selkie319
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Selkie319
Last activity on 12/02/2024 at 12:35 AM
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I think you have to find out how severe your apnea is. In my case, it is severe. Which means that I am not eligible for other options. Do I wish I never had to use a cpap? I sure do. But reality is that I have to wear it, every night. And it took quite a while to get used to it. But I never appreciated it more than when I couldn't use it during the recall. It took me a year and a half to finally get one back - a terrible years and a half just trying to stay awake and able to think. So, no matter how I dislike the machine, I will never stop using it.
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Allinitsleep
Allinitsleep
Last activity on 07/07/2024 at 9:07 PM
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It's hard living with sleep apnea especially when it's going to be with you for the rest of your life. Knowing that every night you have to out that mask on your face and it's suppose to help but to me it only suffacates me .I wear it but I hate it there is a chance that if I don't wear it I'll forget to breath and die which scares me alot. I still wear it .my life depends on it. I get reminded all the time from my family mom don't forget to use your machine .they are scared for my life.unfortubately thats the price of having something you can't control.ive give up my machine 2 or 3 times cause of the mask and I'm not qualified for anything else so I keep getting the mask .I will never get use to it and hate it no matter what sleep apnea really sucks