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What are the needs in terms of digital solutions and information for people with metastatic breast cancer?

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What are the needs in terms of digital solutions and information for people with metastatic breast cancer?

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LizziB

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08/19/2022 at 4:42 PM

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LizziB

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Last activity on 04/21/2024 at 8:17 PM

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603 comments posted | 43 in the Breast cancer Forum

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Hello everyone,

I hope you are doing well 😊

Throughout their care pathway, patients and caregivers may need information and digital solutions to better cope with the metastatic breast cancer consequences. So, let's talk about it together!

What types of digital solutions (online support groups, mobile apps dedicated to metastatic breast cancer, online patient support programs, etc.) did you (or the patient) receive for your (or the patient’s) metastatic breast cancer?
Where do you (or the patient) look at when you (or the patient) seek for new digital solutions (online support groups, mobile apps dedicated to metastatic breast cancer, online patient support programs, etc.) for metastatic breast cancer?
Which information would you (or the patient) need on metastatic breast cancer?

Do not hesitate to share your experience and advice, we are here to exchange and support each other!

Take care,

Lizzi from the Carenity Team

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LizziB

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11/30/2022 at 2:23 PM

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LizziB

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Last activity on 04/21/2024 at 8:17 PM

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603 comments posted | 43 in the Breast cancer Forum

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Hi everyone,

How are you today?

To make sure you are able to find this discussion, I will tag you. Don't hesitate to share your thoughts and experiences about digital solutions.

@Janetmaday @jeangilmorej @patches678 @Millinda48

What type of solutions do you use? Where do you look for these solutions? What information are you looking for?

Let's share!

Take care,

Lizzi

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LizziB

What are the needs in terms of digital solutions and information for people with metastatic breast cancer? https://www.carenity.us/forum/breast-cancer/living-with-metastatic-breast-cancer/what-are-the-needs-in-terms-of-digital-solutions-and-information-for-people-with-metastatic-breast-cancer-4739 2022-11-30 14:23:30

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JanieGurl

12/05/2022 at 12:10 AM

JanieGurl

Last activity on 10/07/2024 at 6:10 PM

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10 comments posted | 9 in the Breast cancer Forum

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Hi @LizziB

I don't really like digital groups, I am more of an in-person type. I like the energy from others. I obviously used google a bunch for research. I also got an app, My Cancer Coach, to track appointments, medicine, etc. It was helpful because it suggested questions to ask my doctor and some were ones I would not have thought of on my own.

LizziB

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01/13/2023 at 12:25 PM

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LizziB

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Last activity on 04/21/2024 at 8:17 PM

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603 comments posted | 43 in the Breast cancer Forum

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Hi @JanieGurl

Thanks for sharing. We had a few more members pass the screener. I will tag them here.

@itaz86 @savvypatient4patients @Janetmaday @jeangilmorej @patches678 @Millinda48

Please share your experiences and responses to the initial question here with the group by clicking the green "reply" button.

Thanks everyone,

Lizzi

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LizziB

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07/08/2021 at 7:19 PM

@Courtney_J I am getting very nervous and scared because the surgery is July 13, 2021. My parents both died this year so I dont have them to talk to. My mom died on Feb 16, 2021 with a sickness she was suffering for 18 months so i was dealing with that for the last months and then my dad had a major stroke 3 weeks after my mom passed away and he could no longer go back to his assistance living so we had to find a nursing home. We found one he was only in there 3 weeks and then he passed away on May 6, 2021. Right after all that I was diagnosed with cancer so I have been on a train that is non-stop. I feel like I am so tried out and I dont have much energy left. My sisters are not helpful they keep telling me just pray. They both got to take 2 weeks vacation after my mom and dad passed away. I have not even had time to take a breather I am just on the train of bad luck. That is how I am feeling.

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07/08/2021 at 7:19 PM

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What are the needs in terms of digital solutions and information for people with metastatic breast cancer?

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