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- I am feeling alone and don't have anyone to talk to
I am feeling alone and don't have anyone to talk to
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MarcBehAnalyst
MarcBehAnalyst
Last activity on 11/11/2024 at 9:51 PM
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17 comments posted | 15 in the Living with cancer group
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I am commenting because these situations break my heart. I was diagnosed with multiple myeloma seven years ago and I sort of understand. Obviously I do not know individual situations.....but I have been through plenty-including almost dying from COVID (which I am sure was worsened because of my pre-existing health condition a few months ago.) I think that one of my greatest strengths is that mentally I keep a positive attitude. As I said, a few times I was on my way out, but I have more to live for so I am not leaving. Besides....my Apple Watch tells me I have to start with being especially mindful today (sort of joking) plus there is a big football game tomorrow......SF vs Green Bay.....something that helps me....I know I need to walk for about an hour every day. I continue with drug therapies that have helped.....but they do not pull me into remission. Hears to hoping that I still have a lot of life. I am so grateful for my friends and contacts-bless you all.
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carolynscottage
carolynscottage
Last activity on 04/04/2024 at 11:00 PM
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2 comments posted | 2 in the Living with cancer group
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@MarcBehAnalyst I think COVID did most of us in. 1st a scarred heart, COPD, then Leukemia now head and neck Cancer. We always got vaccinated when instructed, but these things still happen!!
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Traweb8
Traweb8
Last activity on 03/03/2024 at 6:58 PM
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3 comments posted | 3 in the Living with cancer group
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It is not always easy for me either. I do not have anyone to talk to and not completely due to not having people who love me but they have things going on also so coping alone is not easy
SandyBuerle
SandyBuerle
Last activity on 03/11/2024 at 7:39 PM
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1 comment posted | 1 in the Living with cancer group
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I know the feeling. This is a journey for me and me alone. There are a few people who have stepped up and for that I am grateful. Still, I find myself flying off the handle at scheduling changes, etc. Just to get to and from appointments is a challenge for me. If I can help just by chatting, please let me know. Best, Sandy
retta97
retta97
Last activity on 06/11/2024 at 4:21 PM
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3 comments posted | 3 in the Living with cancer group
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I feel your pain we (my hubby and I ) have been dealing with his prostate cancer since June of 23 and it started with a increase in his PSA by 2 in less than a month,appt with urologist who had him go for an MRI,which showed Prostate ca in 2 areas ,being scheduled for biopsy 6 months later,many phone calls to get a sooner appt,which was done in August and it showed aggressive ca and Gleason score of 8 and 9,then more phone calls as they wanted him to wait until December for a finial appt to refer us to an oncologist,which we did get moved up and the doctor talked about surgery until I informed him hubby had a pacemaker then he could not get rid of us fast enough.Then we go to radiology oncologist and it was all downhill for me because whenever I asked a question I really got the feeling that it was like who are you to question me?Husband will not inquire about any of his treatments but when I do I am the one that bears the brunt of his anger .I was also told by same doctor I needed to seek professional help with the way I am dealing with my husbands ca.So really I feel your pain,just how can you feel positive about this cancer?This is not all that we have been dealing with just a short version,I no longer go in when he talks with his doctors as I have been told by my husband of 47 years "It"s my body,it's my choice".He still wants me to go with him to all radiation and Lupron injection appts but I now stay in waiting room .Then I get to read how on doctor days that he has come unaccompanied of which hubby does not have a problem with. Alone In Rochester,New York
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MarcBehAnalyst
MarcBehAnalyst
Last activity on 11/11/2024 at 9:51 PM
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17 comments posted | 15 in the Living with cancer group
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@retta97 Communication related issues are rough. There is not easy answer to someones tendencies to communicate a. certain way. Its especially tough when a person has a long pattern of communication (a well established tendency)My wife and I have 30 some years of exchanges .We have some heated exchanges, but after a few days we typically come to some understanding. I am the one with the cancer and kidney failure. One of my most successful ways of dealing with this was to write my experiences without needing to always reflect this stuff to my wife. It was a good way to "get it out." Ultimately I wrote a book about it (literally) This provided a way to vent. My wife takes some trips, and has a close girl friend who is pretty cool. These mechanisms help but essentially we walk this path alone.....
carolynscottage
carolynscottage
Last activity on 04/04/2024 at 11:00 PM
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2 comments posted | 2 in the Living with cancer group
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@retta97 It kinda sounds like a nightmare you can't wake up from!
MarcBehAnalyst
MarcBehAnalyst
Last activity on 11/11/2024 at 9:51 PM
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17 comments posted | 15 in the Living with cancer group
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@carolynscottage There its some truth to that thought, but the fact is that it is interspersed with plenty of interesting and beautiful days!
MarcBehAnalyst
MarcBehAnalyst
Last activity on 11/11/2024 at 9:51 PM
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Multiple Myeloma is sort of a nightmare, but I have gotten good treatments, although I am not in remission. I make sure that I have positive situations in my walk with cancer
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D.J.Lomax
D.J.Lomax
Last activity on 04/11/2024 at 3:58 AM
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3 comments posted | 3 in the Living with cancer group
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I'm new here and feel alone as well. I will gladly chat with you anytime.
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D.J. Lomax
D.J.Lomax
D.J.Lomax
Last activity on 04/11/2024 at 3:58 AM
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3 comments posted | 3 in the Living with cancer group
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I will chat with you
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D.J. Lomax
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retta97
retta97
Last activity on 06/11/2024 at 4:21 PM
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@D.J.Lomax Thank you so much,After a HUGE blow up last night we have kind of come to a conclusion and that is I go to all of his radiation appts of which there are 17 more of,remain in waiting room,I can help him deal with all the side effects and ,stay out of "my chart ,do not speak to any of the
medical staff or he will not and I mean not do ny further treatments.That is my choices.By the way there was a a total of 40 treatments of radiation and 2 full years of Lupron injections.So one of the most life changing events in our marriage ,I get to be the clean up lady.
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DCline3dogs
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DCline3dogs
Last activity on 09/15/2024 at 9:30 PM
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I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
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Dianne Cline
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MarcBehAnalyst
MarcBehAnalyst
Last activity on 11/11/2024 at 9:51 PM
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17 comments posted | 15 in the Living with cancer group
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@DCline3dogs That is a lot to struggle with. Do you have any pets?
MarcBehAnalyst
MarcBehAnalyst
Last activity on 11/11/2024 at 9:51 PM
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17 comments posted | 15 in the Living with cancer group
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@DCline3dogs "On-line," is a great way to practice ones expressive skills. I am speaking from my personal experiences and am thankful that I am alive......
DCline3dogs
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DCline3dogs
Last activity on 09/15/2024 at 9:30 PM
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@MarcBehAnalyst I have 3 dogs that I dearly love. I don’t know how I would’ve survived to this point in my life without them. They give love unconditionally. I have a 4 yr old female German Shepherd that follows me everywhere! I also have a female mixed German Shepherd & Pit Bull that I rescued. She’s so loving & loves getting petted. And then there’s my 2 yr old female Pembroke Welsh Corgi! Feisty & full of energy. She follows my German Shepherd everywhere! THIS is my family! They make me laugh & they lick my tears when I cry. I’m so thankful I have them.
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Dianne Cline
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retta97
retta97
Last activity on 06/11/2024 at 4:21 PM
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3 comments posted | 3 in the Living with cancer group
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has any here heard of a radiation boost?
Lah2023
Lah2023
Last activity on 11/12/2024 at 3:12 AM
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I have been fighting this disease for almost 6 years all by myself. My only family lives in another state and I don’t get to see them very often. All my friends are busy working so it is hard to see them as well. I was talking to a therapist but had to stop because of wifi issues. I miss having someone to talk to so it is nice to have this opportunity to talk to others n my same situation
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Carolee
Carolee
Last activity on 04/16/2024 at 4:32 AM
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@Lah2023 i’m finding that people who have never been diagnosed with this disease don’t understand how it affects you. I have a wonderful husband who does his best to take care of me . Takes good care of me I’m afraid he hasn’t accepted that. I never will be any better. Taking immunotherapy, which is not that bad. it’s not a cure for sure and a whole lot better than chemo, so I am thankful for that. The fact still stand that I have stage four colon cancer that has moved to my lymph nodes.
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MarcBehAnalyst
MarcBehAnalyst
Last activity on 11/11/2024 at 9:51 PM
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No simple answer to these complicated issues. I have been a cancer (participant,") ...better then saying "sufferer." for the past eight years. It is something that very few can relate to. The result is that I wrote a book. I felt an encapsulation of my experiences was something I could do, and especially apropos in the event of my death....."My Walk with Multiple Myeloma." More to the point-Find your support team. These days the best thing is that there are a few ways of tying up with others. These ways are not always that emotionally satisfying, but at least they do offer some possibility of support. (I know this is not an answer, it is just intended as something to consider.)
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MarcBehAnalyst
MarcBehAnalyst
Last activity on 11/11/2024 at 9:51 PM
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Am getting another dog (chihuahua) next month. We had two and unfortunately they have passed on. Very happy to get all the support that I do from family and friends. Looking forward to getting that dog and I wish you the best in your struggles.
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Ariel1124
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Ariel1124
Last activity on 11/14/2019 at 9:36 PM
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I'm feeling alone. I dont have anyone to talk to my kids are too little and my grandparents have enough to worry about and my husband just simply doesn't want to hear it I just got the news Wednesday and he's expecting me to be all super positive and roar but I'm not right now I'm not okay I'm sad afraid confused I just want to be held and cry it all out