Home
Share
Forum
Cancer Forum
Treatments for cancer
Anyone else having a difficult time managing side effects for cancer treatments?

Back

Patients Cancer

Anyone else having a difficult time managing side effects for cancer treatments?

593 views
10 times supported
38 comments

Unregistered member

11/14/2018 at 7:25 AM

I'm post single mastectomy stage 1 breast cancer. I been having one he'll of a time managing these awful side effects from, arimidex to exemestane and femara. Migraines, tendonitis, muscle spasms, joint pain, edema, nausea. My oncologist acts like this treatment is not a big deal and I'm one of the rare people who cannot tolerate these treatments. Anyonelse? I feel alone.

All comments

Go to the last comment

Mimasw

05/05/2019 at 8:30 PM

Mimasw

Last activity on 06/27/2019 at 4:45 PM

Joined in 2018

18 comments posted | 17 in the Cancer Forum

Rewards

Contributor
Explorer
Friend

View profileView Add a friendAdd Write

@GinaNewOrleans

I had all the side effects and I thought I was alone in this. Had to stop taking it. I’m on Tamoxifen but can only take it every other day. Doing better on it. It all has been a horrible experience. I want to live but they really need to come up with something better. After all I’ve been through it’s like why did I do it it if it may come back. Chemo and radiation has messed up my body big time and they don’t know if it will come back.

Anyone else having a difficult time managing side effects for cancer treatments? https://www.carenity.us/forum/cancer/your-opinion-on-cancer-treatments/anyone-else-having-a-difficult-time-managing-side-effects-for-cancer-treatments-aromatase-inhibitors-593 2019-05-05 20:30:39

Mimasw

05/05/2019 at 8:32 PM

Mimasw

Last activity on 06/27/2019 at 4:45 PM

Joined in 2018

18 comments posted | 17 in the Cancer Forum

Rewards

Contributor
Explorer
Friend

View profileView Add a friendAdd Write

@sara_at32 they seem to not care what all this has done to our bodies

jackson12

06/19/2019 at 2:48 AM

jackson12

Last activity on 09/21/2022 at 10:11 PM

Joined in 2018

12 comments posted | 7 in the Cancer Forum

Rewards

Contributor
Explorer

View profileView Add a friendAdd Write

@Mimasw I understand where you are coming from. We destroy our bodies with the treatments in hope it works... and in the process we kill basically any of the good cells bodies has left and just hope enough out survive the bad.

I wish there was something better too.

Susang

06/20/2019 at 5:39 PM

Susang

Last activity on 07/24/2023 at 6:17 PM

Joined in 2018

8 comments posted | 6 in the Cancer Forum

Rewards

Contributor
Explorer

View profileView Add a friendAdd Write

I also have what I believe are Chemo and Femara side effects. I feel a great deal of anxiety and sadness. This is in addition to loss of taste and some neuropathy. The worst of these is the depression. I am seeing a therapist, hoping that she will be able to help me get through this and a do go to private yoga sessions twice a week. Can anyone help me get through. I am 2 years since diagnosis and 1 year since end of all treatment. Thank you, Susan

Mimasw

06/21/2019 at 2:35 PM

Mimasw

Last activity on 06/27/2019 at 4:45 PM

Joined in 2018

18 comments posted | 17 in the Cancer Forum

Rewards

Contributor
Explorer
Friend

View profileView Add a friendAdd Write

@Susang The depression was so bad they made me stop taking femara. I tried to stick with it but I just couldn’t. I’m thinking about going off the tamoxifen because I am getting severe muscle pain and can barely walk. Took a break from it and I’m feeling good again. I’m beside myself just wish there was something better.

Mimasw

06/21/2019 at 2:41 PM

Mimasw

Last activity on 06/27/2019 at 4:45 PM

Joined in 2018

18 comments posted | 17 in the Cancer Forum

Rewards

Contributor
Explorer
Friend

View profileView Add a friendAdd Write

@Mimasw I’m reading a book called Estrogen Matters I think anyone going through what we’re dealing with should read this.

Susang

06/21/2019 at 3:11 PM

Susang

Last activity on 07/24/2023 at 6:17 PM

Joined in 2018

8 comments posted | 6 in the Cancer Forum

Rewards

Contributor
Explorer

View profileView Add a friendAdd Write

@Mimasw.. Dear Mimasw. I know how important it is to take the aromatose inhibitor for long term good results. It's such a quandry. I know that there is a third drug. Did you try that?

Mimasw

06/21/2019 at 3:15 PM

Mimasw

Last activity on 06/27/2019 at 4:45 PM

Joined in 2018

18 comments posted | 17 in the Cancer Forum

Rewards

Contributor
Explorer
Friend

View profileView Add a friendAdd Write

@Susang I tried exemestane and it caused even more problems. Memory loss, nausea, insomnia and depression

Susang

06/21/2019 at 3:30 PM

Susang

Last activity on 07/24/2023 at 6:17 PM

Joined in 2018

8 comments posted | 6 in the Cancer Forum

Rewards

Contributor
Explorer

View profileView Add a friendAdd Write

@Mimasw what about Arimedex (so). Have you tried it. Also, what about a mood elevator like Wellbutrin or an anti depressant or a mild tranquilizer. I have been told that the hormone inhibitor may be key to longer term survival. Believe me, I have and continue to ask

Mimasw

06/23/2019 at 1:41 AM

Mimasw

Last activity on 06/27/2019 at 4:45 PM

Joined in 2018

18 comments posted | 17 in the Cancer Forum

Rewards

Contributor
Explorer
Friend

View profileView Add a friendAdd Write

@Susang Tried Arimedex same problems. I’m taking flax seed now hoping it will do the job. I don’t trust the doctors anymore.

Members are also commenting on...

DCline3dogs

02/18/2024 at 9:05 PM

I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.

See the best comment

DCline3dogs

02/18/2024 at 9:05 PM

See the best comment

Articles to discover...

10/03/2019 | Testimonial

Hodgkin lymphoma: symptoms, chemotherapy, nutrition and family support

07/12/2019 | Nutrition

Cancer and food: advice from a dietitian (1/2)

07/03/2019 | Testimonial

Ovarian cancer: discover the world of personalized medicine, where every tumor isn’t treated the same with chemotherapy.

06/25/2019 | Advice

Breast Cancer diagnosis: Carenity members tell their story

01/08/2019 | Nutrition

Does Eating Organic Food Prevent Cancer?

09/06/2018 | Advice

How I Didn’t Let Cancer Stop Me from Thriving (All 9 Times)

02/04/2019 | News

World Cancer Day: Facts and Insights!

10/25/2018 | Testimonial

Examining "alternative treatments" against Breast Cancer

Anyone else having a difficult time managing side effects for cancer treatments?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

How were you diagnosed?

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...