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"But you don't look sick"... what is your experience living with chronic pain?

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"But you don't look sick"... what is your experience living with chronic pain?

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LizziB

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11/16/2023 at 12:50 AM

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LizziB

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Last activity on 04/21/2024 at 8:17 PM

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603 comments posted | 23 in the Chronic pain Forum

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Hello everyone,

How are you doing today?

How many times do you hear "But you don't look sick"? Many struggle to comprehend that people may suffer from invisible illnesses. At Carenity, many people are live with conditions that have "invisible" symptoms.

What about you? Have you experienced these types of comments? Do people understand your situation? Do you tell your coworkers, friends? How do you make it through the day living in pain that people don't understand?

I'll tag a few members to see if they would like to share an experience.

@Lmtoliver @Stevenkinnamon @essie46 @KIMLOVESHERANIMALS @Jamilynn59 @nanaskids61 @Ritajo @HotStuff74 @GraceH-M @Littlball0fire @annaofthewaves @Justin76 @Mscott25 @ColoFox @Sli0807 @ginamc @KellyIdjit @bclryker1960 @Ariffe @Edieb3 @Angie-147 @*SnoopGirl* @itzjustme @CapriIslandGirl @Lbd1956 @Burningpain10 @Mac3451 @ShirleyOakes @Danalynn @Char4237

Take care,

Lizzi from the Carenity team

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Jamilynn59

11/16/2023 at 5:13 AM

Jamilynn59

Last activity on 11/18/2023 at 12:37 AM

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1 comment posted | 1 in the Chronic pain Forum

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Yes of course people do say that it makes me really sad sometimes that I have to explain my self to people that I have a chronic pain disorder on the inside or like I have a handicap parking thing and people say I'm abusing it but I'm not cause it's so difficult to walk just a short distance if those people only knew my struggles

"But you don't look sick"... what is your experience living with chronic pain? https://www.carenity.us/forum/chronic-pain/living-with-chronic-pain/but-you-dont-look-sick-what-is-your-experience-5579 2023-11-16 05:13:03

AS1218

11/29/2023 at 11:30 PM

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AS1218

Last activity on 02/05/2024 at 1:39 AM

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56 comments posted | 8 in the Chronic pain Forum

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I even have trouble with doctors not understanding!

Becholz66

01/04/2024 at 9:28 PM

Becholz66

Last activity on 09/08/2024 at 7:28 AM

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7 comments posted | 5 in the Chronic pain Forum

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I have no neck because of my KFS. I don't mind being asked. It's the stares that bother me. My doctors are my problem. Typically I go in, tell them I have KFS, they say of course I know that, then ask me how to spell it, look it up on their phone IN FRONT OF ME! Then tell me fusions don't cause pain! And act like they know more about it than me! So I still feel unseen.

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Rebecca Holzapfel

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dan.varady

Ambassador

10/17/2023 at 2:30 PM

@Somya.P My neurologist gave me a script through the state dispensary for aid with sleep. It helps with sleep. The script is for low dose THC, so it aids with minor pain. I have learned through my trials of product that CBD gummies help with sleep, but not pain. In my state, CBD gummies can be bought at local corner stores.

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Armor2

05/13/2023 at 5:38 PM

@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN

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MountainMan

Edited on 03/25/2021 at 8:23 PM

Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.

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dan.varady

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10/17/2023 at 2:30 PM

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Armor2

05/13/2023 at 5:38 PM

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MountainMan

Edited on 03/25/2021 at 8:23 PM

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