- Home
- Share
- Forum
- Chronic pain Forum
- Living with chronic pain
- Do you suffer from severe, chronic intractable pain (IP)?
Patients Chronic pain
Do you suffer from severe, chronic intractable pain (IP)?
- 109 views
- 1 support
- 7 comments
All comments
Karenkiwi
Karenkiwi
Last activity on 08/26/2023 at 2:25 PM
Joined in 2023
2 comments posted | 2 in the Chronic pain Forum
1 of their responses was helpful to members
Rewards
-
Explorer
Yes I am in excruciating pain everyday All day and can't find a doctor around here willing to take New patients please help me with this matter asap thanks 🙏 God bless you 😇🙏
sando0826
sando0826
Last activity on 08/18/2024 at 12:00 AM
Joined in 2021
2 comments posted | 1 in the Chronic pain Forum
2 of their responses were helpful to members
Rewards
-
Explorer
I have MS and I have nerve pain that never goes away unless I take really strong drugs that make me unable to do much. It affects my ability to concentrate or enjoy my life. I honestly don’t know what to do!!!
Tstokes
Good advisor
Tstokes
Last activity on 10/15/2024 at 4:53 PM
Joined in 2023
25 comments posted | 8 in the Chronic pain Forum
10 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Explorer
-
Evaluator
-
Friend
I've never heard of this however I would say I fall into this category. I had to have 22 surgeries on my back as a result of radiation to my sacral bone and spine. When people ask me my pain level on a scale of 1-10 I just laugh because it's always at av6bor higher. There are some days better than others but nothing lower than a 5. On the really bad days I get what I call "SHOOTERS". THEY FEEL LIKE IM GETTING 220 VOLTS OF ELECTRICITY DOWN MY LEGS. THEY GIVE ME A JOLT EVERY 3 TO 5 MINUTES AND DONT SUBSIDE UNTIL I TAKE A HEAVY DOSE OF VALIUM. TO KNOCK ME OUT. IN EXTREME CASES THEY'VE LASTED FOR 2 TO 3 DAYS. I've learned to live with this but every day is a challenge to get up and get moving.
See the signature
Thomas F Stokes
FrancescaZoe
FrancescaZoe
Last activity on 08/06/2024 at 12:43 PM
Joined in 2020
2 comments posted | 2 in the Chronic pain Forum
Rewards
-
Explorer
I would like to discuss positive, fruitful, and successful ways to live with bipolar.
Close all
See the responses
LizziB
Community managerGood advisor
LizziB
Community manager
Last activity on 04/21/2024 at 8:17 PM
Joined in 2022
603 comments posted | 23 in the Chronic pain Forum
24 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
@FrancescaZoeFeel free to check out the "Living with bipolar" forum here: https://member.carenity.us/forum/bipolar-disorder/living-with-bipolar-disorder-164
You can read some interview with other bipolar members here: https://member.carenity.us/condition-information/magazine/testimonials?m%5Bname%5D=Bipolar+disorder&m%5Bmid%5D=1003
Take care,
Lizzi from the Carenity team
See the signature
LizziB
Hide the responses
PokerFaceJess
Good advisor
PokerFaceJess
Last activity on 10/29/2024 at 1:40 AM
Joined in 2023
18 comments posted | 16 in the Chronic pain Forum
2 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Explorer
I have intractable chronic pain. I'm getting close to what I consider the "end" of my willingness to ensure UNNECESSARY pain.
Close all
See the responses
joedpain
Good advisor
joedpain
Last activity on 11/12/2024 at 1:38 AM
Joined in 2023
14 comments posted | 9 in the Chronic pain Forum
7 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Explorer
-
Evaluator
@PokerFaceJess Sorry for what you are going through. I also have intractable pain. Pain management has tried different medications with no relief. I feel that my pain Dr. can but will not prescribe something stronger to help relieve the pain. I hope you will find a Dr who is willing to help you.
See the signature
Joe Dominguez
Hide the responses
Give your opinion
Members are also commenting on...
dan.varady
Ambassador@Somya.P My neurologist gave me a script through the state dispensary for aid with sleep. It helps with sleep. The script is for low dose THC, so it aids with minor pain. I have learned through my trials of product that CBD gummies help with sleep, but not pain. In my state, CBD gummies can be bought at local corner stores.
See the best comment
Armor2
@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN
See the best comment
MountainMan
Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.
See the best comment
dan.varady
Ambassador@Somya.P My neurologist gave me a script through the state dispensary for aid with sleep. It helps with sleep. The script is for low dose THC, so it aids with minor pain. I have learned through my trials of product that CBD gummies help with sleep, but not pain. In my state, CBD gummies can be bought at local corner stores.
See the best comment
Armor2
@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN
See the best comment
MountainMan
Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.
See the best comment
Articles to discover...
02/26/2019 | Advice
10/19/2018 | Advice
08/29/2018 | News
Are you interested in CBD oil to help manage your chronic condition?
10/17/2018 | Advice
10/18/2018 | Advice
08/30/2018 | Testimonial
Medication fact sheets - patient opinions...
Subscribe
You wish to be notified of new comments
You have been subscribed
LizziB
Community managerGood advisor
LizziB
Community manager
Last activity on 04/21/2024 at 8:17 PM
Joined in 2022
603 comments posted | 23 in the Chronic pain Forum
24 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Explorer
Friend
Hello everyone,
How are you doing today?
Did you know that epidemiologic surveys indicate that over 40% of the adult population has chronic, recurrent pain, mainly due to musculo-skeletal degenerative conditions, but within this group, there is a sub-group of individuals who suffer constant, excruciating, unrelenting pain. This patient subgroup are commonly referred to as intractable pain (IP) patients.
This pain has been described as "a pain that is excruciating, constant, incurable, and of such severity that it dominates virtually every conscious moment, produces mental and physical debilitation "
What you heard of intractable pain? Do you or someone you know live with chronic intractable pain (IP)? What have their experiences been like? How do they cope?
I'll tag a few members to get the conversation started.
@joedpain @Mlangdon @Mollie1! @Mysharona @Anne1972 @Bluegirl53 @D1969$$ @VictoriaRiegel @Tracy54 @Arhembree @420FlowerChild @Susies @Wendymitch66 @sheardefiance @Laj1963 @Phylholly @Sschauer859 @Kbaase @Buttons#1 @Dinky1 @Stillahippy @Chelle73 @Chatteras @Jeanniegollihue @LUCY2010 @Jennstovall913 @nstacy @Paven95 @Sharon
Take care,
Lizzi from the Carenity team
To read more about IP, please see the source link below:
source: https://www.practicalpainmanagement.com/resources/intractable-pain
practicalpainmanagement.com