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Do you suffer from severe, chronic intractable pain (IP)?

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LizziB

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11/06/2023 at 4:05 PM

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LizziB

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Hello everyone,

How are you doing today?

Did you know that epidemiologic surveys indicate that over 40% of the adult population has chronic, recurrent pain, mainly due to musculo-skeletal degenerative conditions, but within this group, there is a sub-group of individuals who suffer constant, excruciating, unrelenting pain. This patient subgroup are commonly referred to as intractable pain (IP) patients.

This pain has been described as "a pain that is excruciating, constant, incurable, and of such severity that it dominates virtually every conscious moment, produces mental and physical debilitation "

What you heard of intractable pain? Do you or someone you know live with chronic intractable pain (IP)? What have their experiences been like? How do they cope?

I'll tag a few members to get the conversation started.

@joedpain @Mlangdon @Mollie1! @Mysharona @Anne1972 @Bluegirl53 @D1969$$ @VictoriaRiegel @Tracy54 @Arhembree @420FlowerChild @Susies @Wendymitch66 @sheardefiance @Laj1963 @Phylholly @Sschauer859 @Kbaase @Buttons#1 @Dinky1 @Stillahippy @Chelle73 @Chatteras @Jeanniegollihue @LUCY2010 @Jennstovall913 @nstacy @Paven95 @Sharon

Take care,

Lizzi from the Carenity team

To read more about IP, please see the source link below:

source: https://www.practicalpainmanagement.com/resources/intractable-pain

practicalpainmanagement.com

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Karenkiwi

11/10/2023 at 12:03 AM

Karenkiwi

Last activity on 08/26/2023 at 2:25 PM

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Yes I am in excruciating pain everyday All day and can't find a doctor around here willing to take New patients please help me with this matter asap thanks 🙏 God bless you 😇🙏

Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/chronic-pain/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-11-10 00:03:17

sando0826

11/10/2023 at 12:20 AM

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Last activity on 12/16/2024 at 2:04 AM

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I have MS and I have nerve pain that never goes away unless I take really strong drugs that make me unable to do much. It affects my ability to concentrate or enjoy my life. I honestly don’t know what to do!!!

Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/chronic-pain/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-11-10 00:20:09

Tstokes

11/10/2023 at 12:20 AM

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Tstokes

Last activity on 10/15/2024 at 4:53 PM

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I've never heard of this however I would say I fall into this category. I had to have 22 surgeries on my back as a result of radiation to my sacral bone and spine. When people ask me my pain level on a scale of 1-10 I just laugh because it's always at av6bor higher. There are some days better than others but nothing lower than a 5. On the really bad days I get what I call "SHOOTERS". THEY FEEL LIKE IM GETTING 220 VOLTS OF ELECTRICITY DOWN MY LEGS. THEY GIVE ME A JOLT EVERY 3 TO 5 MINUTES AND DONT SUBSIDE UNTIL I TAKE A HEAVY DOSE OF VALIUM. TO KNOCK ME OUT. IN EXTREME CASES THEY'VE LASTED FOR 2 TO 3 DAYS. I've learned to live with this but every day is a challenge to get up and get moving.

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Thomas F Stokes

Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/chronic-pain/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-11-10 00:20:18

FrancescaZoe

11/13/2023 at 11:58 PM

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I would like to discuss positive, fruitful, and successful ways to live with bipolar.

Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/chronic-pain/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-11-13 23:58:22

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LizziB

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11/14/2023 at 2:02 AM

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LizziB

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@FrancescaZoeFeel free to check out the "Living with bipolar" forum here: https://member.carenity.us/forum/bipolar-disorder/living-with-bipolar-disorder-164

You can read some interview with other bipolar members here: https://member.carenity.us/condition-information/magazine/testimonials?m%5Bname%5D=Bipolar+disorder&m%5Bmid%5D=1003

Take care,

Lizzi from the Carenity team

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LizziB

Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/chronic-pain/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-11-14 02:02:26

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PokerFaceJess

12/15/2023 at 1:08 AM

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PokerFaceJess

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I have intractable chronic pain. I'm getting close to what I consider the "end" of my willingness to ensure UNNECESSARY pain.

Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/chronic-pain/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-12-15 01:08:15

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joedpain

12/25/2023 at 8:54 PM

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@PokerFaceJess Sorry for what you are going through. I also have intractable pain. Pain management has tried different medications with no relief. I feel that my pain Dr. can but will not prescribe something stronger to help relieve the pain. I hope you will find a Dr who is willing to help you.

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Joe Dominguez

Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/chronic-pain/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-12-25 20:54:30

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dan.varady

Ambassador

10/17/2023 at 2:30 PM

@Somya.P My neurologist gave me a script through the state dispensary for aid with sleep. It helps with sleep. The script is for low dose THC, so it aids with minor pain. I have learned through my trials of product that CBD gummies help with sleep, but not pain. In my state, CBD gummies can be bought at local corner stores.

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Armor2

05/13/2023 at 5:38 PM

@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN

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MountainMan

Edited on 03/25/2021 at 8:23 PM

Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.

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dan.varady

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10/17/2023 at 2:30 PM

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Armor2

05/13/2023 at 5:38 PM

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MountainMan

Edited on 03/25/2021 at 8:23 PM

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Do you suffer from severe, chronic intractable pain (IP)?

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