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My chronic pain takes away my spontaneity
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LizziB
Community managerGood advisor
LizziB
Community manager
Last activity on 04/21/2024 at 8:17 PM
Joined in 2022
603 comments posted | 23 in the Chronic pain Forum
24 of their responses were helpful to members
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HI @AS1218
How are you doing today?
I'm sorry your post didn't get much visibility. Let me tag a few members who may have experienced something similar.
@Dturner10000 @Nadinesue @Mjwpain1954 @Kellzg39 @Tinasue79 @Derrick7 @yellowribbongirl79 @Becholz66 @Marajade @Rockie @BrokenWing @Debg1959 @Mrkittybuddysmom @KarenC1960 @RAwarrior63 @Sarabiddy1977 @Kymberly222 @PatCranford @Nana2012 @Elbrn! @Terry53 @gillrenay @Harleydean @Janetbochin @Blossombaby123 @Missisant @JulieBrandt @Trae2Day @MystikSkye58 @NothingWorksandnosurgerys
Has chronic pain affected your last-minute plans? How do you plan activities? How do you cope with disappointments? How do your friends/loved ones work within your schedule?
Share your experiences!
Take care,
Lizzi from the Carenity team
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LizziB
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fibrome
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fibrome
Last activity on 02/23/2024 at 12:23 PM
Joined in 2019
22 comments posted | 7 in the Chronic pain Forum
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Hi @LizziB
I have stopped making plans. I commit to activities, my friends know that I want to come, so they will invite me to activities that a head-count is not required. But I do not plan events or invite people to do things in advance anymore. I've had to cancel too often.
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dan.varady
Ambassador@Somya.P My neurologist gave me a script through the state dispensary for aid with sleep. It helps with sleep. The script is for low dose THC, so it aids with minor pain. I have learned through my trials of product that CBD gummies help with sleep, but not pain. In my state, CBD gummies can be bought at local corner stores.
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Armor2
@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN
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MountainMan
Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.
See the best comment
dan.varady
Ambassador@Somya.P My neurologist gave me a script through the state dispensary for aid with sleep. It helps with sleep. The script is for low dose THC, so it aids with minor pain. I have learned through my trials of product that CBD gummies help with sleep, but not pain. In my state, CBD gummies can be bought at local corner stores.
See the best comment
Armor2
@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN
See the best comment
MountainMan
Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.
See the best comment
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AS1218
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AS1218
Last activity on 02/05/2024 at 1:39 AM
Joined in 2018
56 comments posted | 8 in the Chronic pain Forum
3 of their responses were helpful to members
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A few weeks ago I wrote about having to cancel my plans for thanksgiving due to chronic pain. But I am equally as frustrated by not being able to be spontaneous! When I was young, I can remember going out late night with my friends who would randomly just come by. We would go for ice cream and loiter in parking lots. Or I could take a call to drop by someone's house to meet their new dog.
All of those things have stopped. I have to plan my activities weeks in advance to make sure I'll have enough energy. I have to space things days apart. Two days in a row of an outing is essentially out of the question! That is also why missing a planned event is such a bummer- that means I will be essentially aways from my friends or having a real life for almost a whole week!
Lets not even talk about having sex- that also has to be planned, and even when it is. I am barely ever up for it and most of the planned nights get cancelled.
Is anyone else in chronic pain ever able to do spontaneous things? Is there a trick, cuz I'd love to know!