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What’s one thing you wish people understood about living with chronic pain?
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PokerFaceJess
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PokerFaceJess
Last activity on 12/05/2024 at 3:40 AM
Joined in 2023
18 comments posted | 16 in the Chronic pain Forum
3 of their responses were helpful to members
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That it's NOT my fault! I did NOTHING to "cause" my condition AND there's NO way to prevent its rapid progression.
That I wish that I could make plans ahead of time, and that I wouldn't have to cancel. That I was NOT like this!
As for awareness, I am a very vocal advocate! I advocate for the responsible use of opioids medications. I advocate for treatments that can actually help.
Yvonnepuckett1978
Yvonnepuckett1978
Last activity on 12/15/2024 at 5:02 PM
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3 comments posted | 3 in the Chronic pain Forum
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I wish people wouldn't pass judgment what person in their righ y mind would want to endure pain every second of the day , for them to understand u can't work a regular job that it's all u can do somedays to walk that they would quit making u feel like scum because u can't work it adds on to the overwhelming depression I already have that I worked as a nurse for 18 years loved helping others and I didn't judge people what I would give to feel normal again, to continue my desire to help others and now I cant I don't fake it ive had numerous procedures And surgeries and doctors don't just operate on u for fun my conditions are real I have to take pain medication that's takes edge off of pain I hate how u are treated if u take pain medication they treat u like a drug addict what's worse is when it's your own family.i know that was alot but im brutally honest about it pain makes my depression worse because I can't do what I want to do the fact when I eventually have grandchildren I can't run after them that dealing with pain everyday makes life suck so I do what I can and that's all I can do
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dan.varady
Ambassador@Somya.P My neurologist gave me a script through the state dispensary for aid with sleep. It helps with sleep. The script is for low dose THC, so it aids with minor pain. I have learned through my trials of product that CBD gummies help with sleep, but not pain. In my state, CBD gummies can be bought at local corner stores.
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Armor2
@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN
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MountainMan
Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.
See the best comment
dan.varady
Ambassador@Somya.P My neurologist gave me a script through the state dispensary for aid with sleep. It helps with sleep. The script is for low dose THC, so it aids with minor pain. I have learned through my trials of product that CBD gummies help with sleep, but not pain. In my state, CBD gummies can be bought at local corner stores.
See the best comment
Armor2
@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN
See the best comment
MountainMan
Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.
See the best comment
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Somya.P
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Somya.P
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Last activity on 12/21/2024 at 12:52 AM
Joined in 2023
432 comments posted | 14 in the Chronic pain Forum
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Hello everyone,
How are you feeling today?
Living with chronic pain is often misunderstood by those who don’t experience it first-hand. It can affect every part of your life, from work and relationships to just getting through daily activities. But sometimes, the invisible nature of chronic pain makes it hard for others to understand what you’re really going through.
What’s one thing you wish people knew or understood better about living with chronic pain? Have you found effective ways to educate others or advocate for yourself?
@Hallie @Sheshe77 @AngelaHerron @Heath0206 @Hairbear @Frozen24330 @iowakellyfamily @Meadow1 @JulieBrandt @JuJu51 @Jaime1977 @JamesandBetty5772 @JaneNervo @Janelle5135 @jazzy19632000 @Harleydean @Mollie1! @PokerFaceJess @Jgjb0803kl @jims84970 @joedpain @JKay21 @TafiaGraaf @SadMomma @mjdempsey @CJBox61 @JonLurtz @Jort2001 @Queenbee64 @Judyogb @Christena @Bubu1126 @Karensue3340 @KTurner @Kellzg39 @KenWeed43 @Kgeorge0724 @Kiddmedical84 @Knethers @SunshineKiwi @Kkmpk124 @Nance64 @Jodirae @Phoenix @Ladyfage @lauriem7 @Lesab2901 @Karebare79 @Lilgal8855 @Lilimarie88
Let’s talk about what we wish people knew and how we can spread more awareness about what it’s like to live with chronic pain.
Looking forward to hearing your thoughts,
Somya from the Carenity team 🌼