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COPD and nebulizers: How often do you use them?
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Gordon
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Gordon
Last activity on 12/21/2024 at 12:36 AM
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I currently use the Nebulizer with the duo-neb (Ipratropium Bromide and Albuterol Sulfate) three to four times daily as a maintenance drug for my COPD/Emphysema and Asthma. If the Medicare Insurance stops covering my regular maintenance inhaler (Trelegy) next year I will need to see if I can be prescribed the appropriate medicines to add in the Nebulizer to cut the high cost.
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Gordon Harvey
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I have been using Duoneb for my nebulizer for forever. I have a difficult time admitting that I need it at all. Sometimes I need 3 consecutive treatments. If I am not doing well I might require up to like maybe 10 or so treatments in a day. I think my normal might be around 4 or 5 times a day. I am a stubborn person and have lived an entire life with this difficult situation so I know death’s door.
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cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
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CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
See the best comment
cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
See the best comment
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Somya.P
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Somya.P
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Last activity on 12/21/2024 at 12:52 AM
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Hello everyone,
How are you doing? 😊
For many people with COPD, nebulizers play a key role in managing symptoms, especially during flare-ups. Nebulizers can help deliver medication directly to the lungs, making it easier to breathe when your symptoms are particularly severe. However, how often each person uses their nebulizer can vary widely depending on the severity of their condition and their doctor's recommendations.
Do you use a nebulizer regularly, or just during flare-ups? Have you noticed any differences in how often you need it at different times of the year, or when your symptoms are worse?
Also, what kind of medication do you use with your nebulizer, and how effective do you find it compared to inhalers?
@Gordon @fosterl65 @Abbykr @bwestcott @Karensue @Janie1 @thistime2 @smccann @Maynerd @lindaarm @BarbaraCarroll @Rodriguezcorri23 @sammy23 @Bweeze848 @ljaronson @connielee260 @JimHupp @Dmonske @MooMaw @sabrinapeel @Laurafe @ppaulsy12 @ETHELI @Bitsylouise @Smilindeb @Barewalk @gommer1 @Anglkiss @Dazzle64 @BourbonRooster @lilmare11 @dee450 @Annfriday @Sreese78 @Magdamaria2 @Joejanie @Flossey57 @curtdennis-msn.com @jab1857 @Livingston @jwoulf @Cbrewer456 @Quietlywhispers @ErmaWoods @Lkaercher @Jenn01 @Primal @Sandie1755 @DonaldEaton @Bigmark31 @stevenaenglish @It'smeJean @Klinker @Sharonf @AdelineDellaMenefee @Sans5127 @Lcox1212 @Gdad453 @Wrightadam33 @Jackwagon @lvirgilio @Breathmaster @GodismyFather @Rgallagher @Buzztoyota59 @Wendyjo73 @Sueellen @Amma1033 @twolegs @Lillith60 @Tamgat @Stella56 @dlefferts @Smokitcat @Chris54 @Joanhaws @Vegasrose @LyallK @Sunflower1 @eddiejazz @Will65 @ScottHegwood @Joedy1950 @shelley8857 @Bud516 @dmq1952 @jenneighbs @SanGan @cin999 @ruthieandbaby @Rhea60 @Beadlady @Redson @Christi357 @Geniusma @DonMLeBlanc @Paul32579
We’d love to hear your experience with nebulizers and any tips you have for using them effectively!
Take care!
Somya from the Carenity Team 🌼